Cargando…
Sustainability considerations for clinical and translational research informatics infrastructure
A robust biomedical informatics infrastructure is essential for academic health centers engaged in translational research. There are no templates for what such an infrastructure encompasses or how it is funded. An informatics workgroup within the Clinical and Translational Science Awards network con...
Autores principales: | , , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2018
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390401/ https://www.ncbi.nlm.nih.gov/pubmed/30828467 http://dx.doi.org/10.1017/cts.2018.332 |
_version_ | 1783398137357926400 |
---|---|
author | Obeid, Jihad S. Tarczy-Hornoch, Peter Harris, Paul A. Barnett, William K. Anderson, Nicholas R. Embi, Peter J. Hogan, William R. Bell, Douglas S. McIntosh, Leslie D. Knosp, Boyd Tachinardi, Umberto Cimino, James J. Wehbe, Firas H. |
author_facet | Obeid, Jihad S. Tarczy-Hornoch, Peter Harris, Paul A. Barnett, William K. Anderson, Nicholas R. Embi, Peter J. Hogan, William R. Bell, Douglas S. McIntosh, Leslie D. Knosp, Boyd Tachinardi, Umberto Cimino, James J. Wehbe, Firas H. |
author_sort | Obeid, Jihad S. |
collection | PubMed |
description | A robust biomedical informatics infrastructure is essential for academic health centers engaged in translational research. There are no templates for what such an infrastructure encompasses or how it is funded. An informatics workgroup within the Clinical and Translational Science Awards network conducted an analysis to identify the scope, governance, and funding of this infrastructure. After we identified the essential components of an informatics infrastructure, we surveyed informatics leaders at network institutions about the governance and sustainability of the different components. Results from 42 survey respondents showed significant variations in governance and sustainability; however, some trends also emerged. Core informatics components such as electronic data capture systems, electronic health records data repositories, and related tools had mixed models of funding including, fee-for-service, extramural grants, and institutional support. Several key components such as regulatory systems (e.g., electronic Institutional Review Board [IRB] systems, grants, and contracts), security systems, data warehouses, and clinical trials management systems were overwhelmingly supported as institutional infrastructure. The findings highlighted in this report are worth noting for academic health centers and funding agencies involved in planning current and future informatics infrastructure, which provides the foundation for a robust, data-driven clinical and translational research program. |
format | Online Article Text |
id | pubmed-6390401 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Cambridge University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-63904012019-03-01 Sustainability considerations for clinical and translational research informatics infrastructure Obeid, Jihad S. Tarczy-Hornoch, Peter Harris, Paul A. Barnett, William K. Anderson, Nicholas R. Embi, Peter J. Hogan, William R. Bell, Douglas S. McIntosh, Leslie D. Knosp, Boyd Tachinardi, Umberto Cimino, James J. Wehbe, Firas H. J Clin Transl Sci Implementation, Policy and Community Engagement A robust biomedical informatics infrastructure is essential for academic health centers engaged in translational research. There are no templates for what such an infrastructure encompasses or how it is funded. An informatics workgroup within the Clinical and Translational Science Awards network conducted an analysis to identify the scope, governance, and funding of this infrastructure. After we identified the essential components of an informatics infrastructure, we surveyed informatics leaders at network institutions about the governance and sustainability of the different components. Results from 42 survey respondents showed significant variations in governance and sustainability; however, some trends also emerged. Core informatics components such as electronic data capture systems, electronic health records data repositories, and related tools had mixed models of funding including, fee-for-service, extramural grants, and institutional support. Several key components such as regulatory systems (e.g., electronic Institutional Review Board [IRB] systems, grants, and contracts), security systems, data warehouses, and clinical trials management systems were overwhelmingly supported as institutional infrastructure. The findings highlighted in this report are worth noting for academic health centers and funding agencies involved in planning current and future informatics infrastructure, which provides the foundation for a robust, data-driven clinical and translational research program. Cambridge University Press 2018-12-05 /pmc/articles/PMC6390401/ /pubmed/30828467 http://dx.doi.org/10.1017/cts.2018.332 Text en © Cambridge University Press 2018 http://creativecommons.org/licenses/by-nc-sa/4.0/ This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike licence (http://creativecommons.org/licenses/by-nc-sa/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the same Creative Commons licence is included and the original work is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use. |
spellingShingle | Implementation, Policy and Community Engagement Obeid, Jihad S. Tarczy-Hornoch, Peter Harris, Paul A. Barnett, William K. Anderson, Nicholas R. Embi, Peter J. Hogan, William R. Bell, Douglas S. McIntosh, Leslie D. Knosp, Boyd Tachinardi, Umberto Cimino, James J. Wehbe, Firas H. Sustainability considerations for clinical and translational research informatics infrastructure |
title | Sustainability considerations for clinical and translational research informatics infrastructure |
title_full | Sustainability considerations for clinical and translational research informatics infrastructure |
title_fullStr | Sustainability considerations for clinical and translational research informatics infrastructure |
title_full_unstemmed | Sustainability considerations for clinical and translational research informatics infrastructure |
title_short | Sustainability considerations for clinical and translational research informatics infrastructure |
title_sort | sustainability considerations for clinical and translational research informatics infrastructure |
topic | Implementation, Policy and Community Engagement |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390401/ https://www.ncbi.nlm.nih.gov/pubmed/30828467 http://dx.doi.org/10.1017/cts.2018.332 |
work_keys_str_mv | AT obeidjihads sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT tarczyhornochpeter sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT harrispaula sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT barnettwilliamk sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT andersonnicholasr sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT embipeterj sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT hoganwilliamr sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT belldouglass sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT mcintoshleslied sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT knospboyd sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT tachinardiumberto sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT ciminojamesj sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure AT wehbefirash sustainabilityconsiderationsforclinicalandtranslationalresearchinformaticsinfrastructure |