Cargando…

Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study

BACKGROUND: Cancer among Indigenous people is increasing faster than overall Canadian rates. Lack of survivorship support, including screening and follow-up for recurrences, contributes to poor health outcomes and low 5-year survival rates. Historical trauma from colonization and lack of culturally...

Descripción completa

Detalles Bibliográficos
Autores principales: Gifford, Wendy, Thomas, Roanne, Barton, Gwen, Graham, Ian D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390536/
https://www.ncbi.nlm.nih.gov/pubmed/30858983
http://dx.doi.org/10.1186/s40814-019-0422-9
_version_ 1783398157167624192
author Gifford, Wendy
Thomas, Roanne
Barton, Gwen
Graham, Ian D.
author_facet Gifford, Wendy
Thomas, Roanne
Barton, Gwen
Graham, Ian D.
author_sort Gifford, Wendy
collection PubMed
description BACKGROUND: Cancer among Indigenous people is increasing faster than overall Canadian rates. Lack of survivorship support, including screening and follow-up for recurrences, contributes to poor health outcomes and low 5-year survival rates. Historical trauma from colonization and lack of culturally safe and responsive healthcare has negatively affected Indigenous peoples’ access to survivorship supports. Nurses are typically the sole practitioners of health services in rural and remote Indigenous communities and can enhance the development, implementation, and delivery of culturally safe survivorship supports. However, the implementation of culturally safe healthcare in Indigenous communities is not well developed. This is the third study in a larger program of research with an overarching goal to improve healthcare delivery and outcomes with Indigenous people in Canada. In this study, we will field test nurses’ implementation of cancer survivorship care with Indigenous people in Ontario, Canada. METHODS: The study is a descriptive participatory mixed methods research design involving a systematic review, field testing implementation of cancer survivorship supports in two communities, focus groups, and qualitative interviews. Outcomes include feasibility of implementation, acceptability of the strategies, and perceived impact on healing and psychosocial support. DISCUSSION: Results will advance knowledge about implementing culturally safe cancer survivorship supports with Indigenous people in Ontario. A toolkit will be developed to inform nursing practices, programs, and policies to improve cancer survivorship supports and strategies with Indigenous people. Findings will inform a large-scale implementation study to reduce healthcare disadvantages and disparities within Indigenous communities across Canada.
format Online
Article
Text
id pubmed-6390536
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-63905362019-03-11 Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study Gifford, Wendy Thomas, Roanne Barton, Gwen Graham, Ian D. Pilot Feasibility Stud Study Protocol BACKGROUND: Cancer among Indigenous people is increasing faster than overall Canadian rates. Lack of survivorship support, including screening and follow-up for recurrences, contributes to poor health outcomes and low 5-year survival rates. Historical trauma from colonization and lack of culturally safe and responsive healthcare has negatively affected Indigenous peoples’ access to survivorship supports. Nurses are typically the sole practitioners of health services in rural and remote Indigenous communities and can enhance the development, implementation, and delivery of culturally safe survivorship supports. However, the implementation of culturally safe healthcare in Indigenous communities is not well developed. This is the third study in a larger program of research with an overarching goal to improve healthcare delivery and outcomes with Indigenous people in Canada. In this study, we will field test nurses’ implementation of cancer survivorship care with Indigenous people in Ontario, Canada. METHODS: The study is a descriptive participatory mixed methods research design involving a systematic review, field testing implementation of cancer survivorship supports in two communities, focus groups, and qualitative interviews. Outcomes include feasibility of implementation, acceptability of the strategies, and perceived impact on healing and psychosocial support. DISCUSSION: Results will advance knowledge about implementing culturally safe cancer survivorship supports with Indigenous people in Ontario. A toolkit will be developed to inform nursing practices, programs, and policies to improve cancer survivorship supports and strategies with Indigenous people. Findings will inform a large-scale implementation study to reduce healthcare disadvantages and disparities within Indigenous communities across Canada. BioMed Central 2019-02-26 /pmc/articles/PMC6390536/ /pubmed/30858983 http://dx.doi.org/10.1186/s40814-019-0422-9 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Study Protocol
Gifford, Wendy
Thomas, Roanne
Barton, Gwen
Graham, Ian D.
Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study
title Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study
title_full Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study
title_fullStr Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study
title_full_unstemmed Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study
title_short Providing culturally safe cancer survivorship care with Indigenous communities: study protocol for an integrated knowledge translation study
title_sort providing culturally safe cancer survivorship care with indigenous communities: study protocol for an integrated knowledge translation study
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390536/
https://www.ncbi.nlm.nih.gov/pubmed/30858983
http://dx.doi.org/10.1186/s40814-019-0422-9
work_keys_str_mv AT giffordwendy providingculturallysafecancersurvivorshipcarewithindigenouscommunitiesstudyprotocolforanintegratedknowledgetranslationstudy
AT thomasroanne providingculturallysafecancersurvivorshipcarewithindigenouscommunitiesstudyprotocolforanintegratedknowledgetranslationstudy
AT bartongwen providingculturallysafecancersurvivorshipcarewithindigenouscommunitiesstudyprotocolforanintegratedknowledgetranslationstudy
AT grahamiand providingculturallysafecancersurvivorshipcarewithindigenouscommunitiesstudyprotocolforanintegratedknowledgetranslationstudy