Cargando…
The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report
In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patien...
Autores principales: | , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove Medical Press
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390871/ https://www.ncbi.nlm.nih.gov/pubmed/30863194 http://dx.doi.org/10.2147/AHMT.S199489 |
_version_ | 1783398219682676736 |
---|---|
author | Cioana, Milena Peterson, Devin Missiuna, Paul El-Hawary, Ron Carey, Timothy Potter, Murray A Banfield, Laura Thabane, Lehana Samaan, M Constantine |
author_facet | Cioana, Milena Peterson, Devin Missiuna, Paul El-Hawary, Ron Carey, Timothy Potter, Murray A Banfield, Laura Thabane, Lehana Samaan, M Constantine |
author_sort | Cioana, Milena |
collection | PubMed |
description | In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders’ perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants’ main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts. |
format | Online Article Text |
id | pubmed-6390871 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Dove Medical Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-63908712019-03-12 The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report Cioana, Milena Peterson, Devin Missiuna, Paul El-Hawary, Ron Carey, Timothy Potter, Murray A Banfield, Laura Thabane, Lehana Samaan, M Constantine Adolesc Health Med Ther Meeting Report In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders’ perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants’ main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts. Dove Medical Press 2019-02-22 /pmc/articles/PMC6390871/ /pubmed/30863194 http://dx.doi.org/10.2147/AHMT.S199489 Text en © 2019 Cioana et al. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. |
spellingShingle | Meeting Report Cioana, Milena Peterson, Devin Missiuna, Paul El-Hawary, Ron Carey, Timothy Potter, Murray A Banfield, Laura Thabane, Lehana Samaan, M Constantine The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
title | The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
title_full | The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
title_fullStr | The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
title_full_unstemmed | The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
title_short | The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
title_sort | creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report |
topic | Meeting Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390871/ https://www.ncbi.nlm.nih.gov/pubmed/30863194 http://dx.doi.org/10.2147/AHMT.S199489 |
work_keys_str_mv | AT cioanamilena thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT petersondevin thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT missiunapaul thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT elhawaryron thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT careytimothy thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT pottermurraya thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT banfieldlaura thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT thabanelehana thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT samaanmconstantine thecreationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT cioanamilena creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT petersondevin creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT missiunapaul creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT elhawaryron creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT careytimothy creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT pottermurraya creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT banfieldlaura creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT thabanelehana creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport AT samaanmconstantine creationofanationalcoalitiontotargetadolescentidiopathicscoliosisameetingreport |