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Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis

This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic imp...

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Detalles Bibliográficos
Autores principales: Hollin, Gregory, Pearce, Warren
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6394559/
https://www.ncbi.nlm.nih.gov/pubmed/30357647
http://dx.doi.org/10.1007/s10803-018-3783-7
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author Hollin, Gregory
Pearce, Warren
author_facet Hollin, Gregory
Pearce, Warren
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description This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed.
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spelling pubmed-63945592019-03-15 Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis Hollin, Gregory Pearce, Warren J Autism Dev Disord Original Paper This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed. Springer US 2018-10-24 2019 /pmc/articles/PMC6394559/ /pubmed/30357647 http://dx.doi.org/10.1007/s10803-018-3783-7 Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Original Paper
Hollin, Gregory
Pearce, Warren
Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis
title Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis
title_full Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis
title_fullStr Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis
title_full_unstemmed Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis
title_short Autism Scientists’ Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis
title_sort autism scientists’ reflections on the opportunities and challenges of public engagement: a qualitative analysis
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6394559/
https://www.ncbi.nlm.nih.gov/pubmed/30357647
http://dx.doi.org/10.1007/s10803-018-3783-7
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