Cargando…

The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer

There is an urgent need for solutions to the economic and social inequalities in cancer care that still exist in many European countries. Patient preferences, ‘big data’, mobile digital technology and molecular and genomic profiling are among the innovative research topics that connect cancer patien...

Descripción completa

Detalles Bibliográficos
Autores principales: de Lorenzo, Francesco, Apostolidis, Kathi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6396363/
https://www.ncbi.nlm.nih.gov/pubmed/30657631
http://dx.doi.org/10.1002/1878-0261.12448
_version_ 1783399234723119104
author de Lorenzo, Francesco
Apostolidis, Kathi
author_facet de Lorenzo, Francesco
Apostolidis, Kathi
author_sort de Lorenzo, Francesco
collection PubMed
description There is an urgent need for solutions to the economic and social inequalities in cancer care that still exist in many European countries. Patient preferences, ‘big data’, mobile digital technology and molecular and genomic profiling are among the innovative research topics that connect cancer patients to comprehensive cancer centres, and link translational research to cancer diagnosis, treatment and care. The question is whether Europe can deliver the complex infrastructure needed for universal coverage and equitable access to cancer care. The European Cancer Patient Coalition (ECPC), the leading ‘umbrella’ cancer patient organisation in Europe, has a central role in bringing the unmet needs of patients with cancer to the forefront of cancer policy, care and research. The ECPC is a respected and reliable partner in the oncology community and has effectively collaborated with institutional stakeholders and organisations, as well as with the European Commission, on cancer research projects and in the development of tools to advance health care and cancer policies at the European and national level. The ECPC believes that innovation cannot emerge and grow without patient involvement and is fully committed to increasing patient education and contribution in cancer research through its active participation in various European cancer research programmes and educational resources. The ECPC is expected to play a major role in the mission on cancer, given its previous achievements in policy and research to help overcome the inequalities in cancer prevention, treatment, rehabilitation and survivorship care. The mission on cancer will be facilitated by active collaboration between patient organisations and scientists, clinicians, politicians and industry, with the aim of identifying important research questions regarding quality of life and social issues for cancer patients of all ages.
format Online
Article
Text
id pubmed-6396363
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-63963632019-03-11 The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer de Lorenzo, Francesco Apostolidis, Kathi Mol Oncol Review Articles There is an urgent need for solutions to the economic and social inequalities in cancer care that still exist in many European countries. Patient preferences, ‘big data’, mobile digital technology and molecular and genomic profiling are among the innovative research topics that connect cancer patients to comprehensive cancer centres, and link translational research to cancer diagnosis, treatment and care. The question is whether Europe can deliver the complex infrastructure needed for universal coverage and equitable access to cancer care. The European Cancer Patient Coalition (ECPC), the leading ‘umbrella’ cancer patient organisation in Europe, has a central role in bringing the unmet needs of patients with cancer to the forefront of cancer policy, care and research. The ECPC is a respected and reliable partner in the oncology community and has effectively collaborated with institutional stakeholders and organisations, as well as with the European Commission, on cancer research projects and in the development of tools to advance health care and cancer policies at the European and national level. The ECPC believes that innovation cannot emerge and grow without patient involvement and is fully committed to increasing patient education and contribution in cancer research through its active participation in various European cancer research programmes and educational resources. The ECPC is expected to play a major role in the mission on cancer, given its previous achievements in policy and research to help overcome the inequalities in cancer prevention, treatment, rehabilitation and survivorship care. The mission on cancer will be facilitated by active collaboration between patient organisations and scientists, clinicians, politicians and industry, with the aim of identifying important research questions regarding quality of life and social issues for cancer patients of all ages. John Wiley and Sons Inc. 2019-02-06 2019-03 /pmc/articles/PMC6396363/ /pubmed/30657631 http://dx.doi.org/10.1002/1878-0261.12448 Text en © 2019 The Authors. Published by FEBS Press and John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Articles
de Lorenzo, Francesco
Apostolidis, Kathi
The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
title The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
title_full The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
title_fullStr The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
title_full_unstemmed The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
title_short The European Cancer Patient Coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
title_sort european cancer patient coalition and its central role in connecting stakeholders to advance patient‐centric solutions in the mission on cancer
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6396363/
https://www.ncbi.nlm.nih.gov/pubmed/30657631
http://dx.doi.org/10.1002/1878-0261.12448
work_keys_str_mv AT delorenzofrancesco theeuropeancancerpatientcoalitionanditscentralroleinconnectingstakeholderstoadvancepatientcentricsolutionsinthemissiononcancer
AT apostolidiskathi theeuropeancancerpatientcoalitionanditscentralroleinconnectingstakeholderstoadvancepatientcentricsolutionsinthemissiononcancer
AT delorenzofrancesco europeancancerpatientcoalitionanditscentralroleinconnectingstakeholderstoadvancepatientcentricsolutionsinthemissiononcancer
AT apostolidiskathi europeancancerpatientcoalitionanditscentralroleinconnectingstakeholderstoadvancepatientcentricsolutionsinthemissiononcancer