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Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study
INTRODUCTION: Cancer is often considered a chronic disease, and most people with cancer have a caregiver, often a family member or friend who provides a significant amount of care during the illness trajectory. Caregivers are frequently in need of support, and a range of interventions have been tria...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6398770/ https://www.ncbi.nlm.nih.gov/pubmed/30765405 http://dx.doi.org/10.1136/bmjopen-2018-024725 |
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author | Blaschke, Sarah-May Lambert, Sylvie D Livingston, Patricia M Aranda, Sanchia Boltong, Anna Schofield, Penelope Chambers, Suzanne K Krishnasamy, Meinir Ugalde, Anna |
author_facet | Blaschke, Sarah-May Lambert, Sylvie D Livingston, Patricia M Aranda, Sanchia Boltong, Anna Schofield, Penelope Chambers, Suzanne K Krishnasamy, Meinir Ugalde, Anna |
author_sort | Blaschke, Sarah-May |
collection | PubMed |
description | INTRODUCTION: Cancer is often considered a chronic disease, and most people with cancer have a caregiver, often a family member or friend who provides a significant amount of care during the illness trajectory. Caregivers are frequently in need of support, and a range of interventions have been trialled to improve outcomes. Consensus for optimal ways to support caregivers is not known. The aim of this protocol paper is to describe procedures for a modified Delphi study to explore expert consensus about important factors when developing caregiver interventions. METHODS AND ANALYSIS: Online modified Delphi methodology will be used to establish consensus for important caregiver intervention factors incorporating the Patient problem, Intervention, Comparison and Outcome framework. Round 1 will comprise a free-text questionnaire and invite the panel to contribute factors they deem important in the development and evaluation of caregiver interventions. Round 2 is designed to determine preliminary consensus of the importance of factors generated in round 1. The panel will be asked to rate each factor using a 4-point Likert-type scale. The option for panellists to state reasoning for their rating will be provided. Descriptive statistics (median scores and IQR) will be calculated to determine each item’s relative importance. Levels of consensus will be assessed based on a predefined consensus rating matrix. In round 3, factors will be recirculated including aggregate group responses (statistics and comment summaries) and panellists’ own round 2 scores. Panellists will be invited to reconsider their judgements and resubmit ratings using the same rating system as in round 2. This will result in priority lists based on the panel’s total rating scores. ETHICS AND DISSEMINATION: Ethics for this study has been gained from the Deakin University Human Ethics Advisory Group. It is anticipated that the results will be published in peer-reviewed journals and presented in a variety of forums. |
format | Online Article Text |
id | pubmed-6398770 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-63987702019-03-20 Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study Blaschke, Sarah-May Lambert, Sylvie D Livingston, Patricia M Aranda, Sanchia Boltong, Anna Schofield, Penelope Chambers, Suzanne K Krishnasamy, Meinir Ugalde, Anna BMJ Open Oncology INTRODUCTION: Cancer is often considered a chronic disease, and most people with cancer have a caregiver, often a family member or friend who provides a significant amount of care during the illness trajectory. Caregivers are frequently in need of support, and a range of interventions have been trialled to improve outcomes. Consensus for optimal ways to support caregivers is not known. The aim of this protocol paper is to describe procedures for a modified Delphi study to explore expert consensus about important factors when developing caregiver interventions. METHODS AND ANALYSIS: Online modified Delphi methodology will be used to establish consensus for important caregiver intervention factors incorporating the Patient problem, Intervention, Comparison and Outcome framework. Round 1 will comprise a free-text questionnaire and invite the panel to contribute factors they deem important in the development and evaluation of caregiver interventions. Round 2 is designed to determine preliminary consensus of the importance of factors generated in round 1. The panel will be asked to rate each factor using a 4-point Likert-type scale. The option for panellists to state reasoning for their rating will be provided. Descriptive statistics (median scores and IQR) will be calculated to determine each item’s relative importance. Levels of consensus will be assessed based on a predefined consensus rating matrix. In round 3, factors will be recirculated including aggregate group responses (statistics and comment summaries) and panellists’ own round 2 scores. Panellists will be invited to reconsider their judgements and resubmit ratings using the same rating system as in round 2. This will result in priority lists based on the panel’s total rating scores. ETHICS AND DISSEMINATION: Ethics for this study has been gained from the Deakin University Human Ethics Advisory Group. It is anticipated that the results will be published in peer-reviewed journals and presented in a variety of forums. BMJ Publishing Group 2019-02-13 /pmc/articles/PMC6398770/ /pubmed/30765405 http://dx.doi.org/10.1136/bmjopen-2018-024725 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/. |
spellingShingle | Oncology Blaschke, Sarah-May Lambert, Sylvie D Livingston, Patricia M Aranda, Sanchia Boltong, Anna Schofield, Penelope Chambers, Suzanne K Krishnasamy, Meinir Ugalde, Anna Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study |
title | Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study |
title_full | Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study |
title_fullStr | Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study |
title_full_unstemmed | Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study |
title_short | Identifying priorities for cancer caregiver interventions: protocol for a three-round modified Delphi study |
title_sort | identifying priorities for cancer caregiver interventions: protocol for a three-round modified delphi study |
topic | Oncology |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6398770/ https://www.ncbi.nlm.nih.gov/pubmed/30765405 http://dx.doi.org/10.1136/bmjopen-2018-024725 |
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