Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities

To date, there has been limited research on the primary concerns and treatment priorities for individuals with fragile X syndrome (FXS) and their families. The National Fragile X Foundation in collaboration with clinical investigators from industry and academia constructed a survey to investigate th...

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Detalles Bibliográficos
Autores principales: Weber, Jayne Dixon, Smith, Elizabeth, Berry-Kravis, Elizabeth, Cadavid, Diego, Hessl, David, Erickson, Craig
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6406416/
https://www.ncbi.nlm.nih.gov/pubmed/30678024
http://dx.doi.org/10.3390/brainsci9020018

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