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Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

AIMS: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in o...

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Autores principales: Bousquet, J., Bedbrook, A., Czarlewski, W., Onorato, G. L., Arnavielhe, S., Laune, D., Mathieu-Dupas, E., Fonseca, J., Costa, E., Lourenço, O., Morais-Almeida, M., Todo-Bom, A., Illario, M., Menditto, E., Canonica, G. W., Cecchi, L., Monti, R., Napoli, L., Ventura, M. T., De Feo, G., Fokkens, W. J., Chavannes, N. H., Reitsma, S., Cruz, A. A., da Silva, J., Serpa, F. S., Larenas-Linnemann, D., Fuentes Perez, J. M., Huerta-Villalobos, Y. R., Rivero-Yeverino, D., Rodriguez-Zagal, E., Valiulis, A., Dubakiene, R., Emuzyte, R., Kvedariene, V., Annesi-Maesano, I., Blain, H., Bonniaud, P., Bosse, I., Dauvilliers, Y., Devillier, P., Fontaine, J. F., Pépin, J. L., Pham-Thi, N., Portejoie, F., Picard, R., Roche, N., Rolland, C., Schmidt-Grendelmeier, P., Kuna, P., Samolinski, B., Anto, J. M., Cardona, V., Mullol, J., Pinnock, H., Ryan, D., Sheikh, A., Walker, S., Williams, S., Becker, S., Klimek, L., Pfaar, O., Bergmann, K. C., Mösges, R., Zuberbier, T., Roller-Wirnsberger, R. E., Tomazic, P. V., Haahtela, T., Salimäki, J., Toppila-Salmi, S., Valovirta, E., Vasankari, T., Gemicioğlu, B., Yorgancioglu, A., Papadopoulos, N. G., Prokopakis, E. P., Tsiligianni, I. G., Bosnic-Anticevich, S., O’Hehir, R., Ivancevich, J. C., Neffen, H., Zernotti, M. E., Kull, I., Melén, E., Wickman, M., Bachert, C., Hellings, P. W., Brusselle, G., Palkonen, S., Bindslev-Jensen, C., Eller, E., Waserman, S., Boulet, L. P., Bouchard, J., Chu, D. K., Schünemann, H. J., Sova, M., De Vries, G., van Eerd, M., Agache, I., Ansotegui, I. J., Bewick, M., Casale, T., Dykewick, M., Ebisawa, M., Murray, R., Naclerio, R., Okamoto, Y., Wallace, D. V.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6413444/
https://www.ncbi.nlm.nih.gov/pubmed/30911372
http://dx.doi.org/10.1186/s13601-019-0252-0
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author Bousquet, J.
Bedbrook, A.
Czarlewski, W.
Onorato, G. L.
Arnavielhe, S.
Laune, D.
Mathieu-Dupas, E.
Fonseca, J.
Costa, E.
Lourenço, O.
Morais-Almeida, M.
Todo-Bom, A.
Illario, M.
Menditto, E.
Canonica, G. W.
Cecchi, L.
Monti, R.
Napoli, L.
Ventura, M. T.
De Feo, G.
Fokkens, W. J.
Chavannes, N. H.
Reitsma, S.
Cruz, A. A.
da Silva, J.
Serpa, F. S.
Larenas-Linnemann, D.
Fuentes Perez, J. M.
Huerta-Villalobos, Y. R.
Rivero-Yeverino, D.
Rodriguez-Zagal, E.
Valiulis, A.
Dubakiene, R.
Emuzyte, R.
Kvedariene, V.
Annesi-Maesano, I.
Blain, H.
Bonniaud, P.
Bosse, I.
Dauvilliers, Y.
Devillier, P.
Fontaine, J. F.
Pépin, J. L.
Pham-Thi, N.
Portejoie, F.
Picard, R.
Roche, N.
Rolland, C.
Schmidt-Grendelmeier, P.
Kuna, P.
Samolinski, B.
Anto, J. M.
Cardona, V.
Mullol, J.
Pinnock, H.
Ryan, D.
Sheikh, A.
Walker, S.
Williams, S.
Becker, S.
Klimek, L.
Pfaar, O.
Bergmann, K. C.
Mösges, R.
Zuberbier, T.
Roller-Wirnsberger, R. E.
Tomazic, P. V.
Haahtela, T.
Salimäki, J.
Toppila-Salmi, S.
Valovirta, E.
Vasankari, T.
Gemicioğlu, B.
Yorgancioglu, A.
Papadopoulos, N. G.
Prokopakis, E. P.
Tsiligianni, I. G.
Bosnic-Anticevich, S.
O’Hehir, R.
Ivancevich, J. C.
Neffen, H.
Zernotti, M. E.
Kull, I.
Melén, E.
Wickman, M.
Bachert, C.
Hellings, P. W.
Brusselle, G.
Palkonen, S.
Bindslev-Jensen, C.
Eller, E.
Waserman, S.
Boulet, L. P.
Bouchard, J.
Chu, D. K.
Schünemann, H. J.
Sova, M.
De Vries, G.
van Eerd, M.
Agache, I.
Ansotegui, I. J.
Bewick, M.
Casale, T.
Dykewick, M.
Ebisawa, M.
Murray, R.
Naclerio, R.
Okamoto, Y.
Wallace, D. V.
author_facet Bousquet, J.
Bedbrook, A.
Czarlewski, W.
Onorato, G. L.
Arnavielhe, S.
Laune, D.
Mathieu-Dupas, E.
Fonseca, J.
Costa, E.
Lourenço, O.
Morais-Almeida, M.
Todo-Bom, A.
Illario, M.
Menditto, E.
Canonica, G. W.
Cecchi, L.
Monti, R.
Napoli, L.
Ventura, M. T.
De Feo, G.
Fokkens, W. J.
Chavannes, N. H.
Reitsma, S.
Cruz, A. A.
da Silva, J.
Serpa, F. S.
Larenas-Linnemann, D.
Fuentes Perez, J. M.
Huerta-Villalobos, Y. R.
Rivero-Yeverino, D.
Rodriguez-Zagal, E.
Valiulis, A.
Dubakiene, R.
Emuzyte, R.
Kvedariene, V.
Annesi-Maesano, I.
Blain, H.
Bonniaud, P.
Bosse, I.
Dauvilliers, Y.
Devillier, P.
Fontaine, J. F.
Pépin, J. L.
Pham-Thi, N.
Portejoie, F.
Picard, R.
Roche, N.
Rolland, C.
Schmidt-Grendelmeier, P.
Kuna, P.
Samolinski, B.
Anto, J. M.
Cardona, V.
Mullol, J.
Pinnock, H.
Ryan, D.
Sheikh, A.
Walker, S.
Williams, S.
Becker, S.
Klimek, L.
Pfaar, O.
Bergmann, K. C.
Mösges, R.
Zuberbier, T.
Roller-Wirnsberger, R. E.
Tomazic, P. V.
Haahtela, T.
Salimäki, J.
Toppila-Salmi, S.
Valovirta, E.
Vasankari, T.
Gemicioğlu, B.
Yorgancioglu, A.
Papadopoulos, N. G.
Prokopakis, E. P.
Tsiligianni, I. G.
Bosnic-Anticevich, S.
O’Hehir, R.
Ivancevich, J. C.
Neffen, H.
Zernotti, M. E.
Kull, I.
Melén, E.
Wickman, M.
Bachert, C.
Hellings, P. W.
Brusselle, G.
Palkonen, S.
Bindslev-Jensen, C.
Eller, E.
Waserman, S.
Boulet, L. P.
Bouchard, J.
Chu, D. K.
Schünemann, H. J.
Sova, M.
De Vries, G.
van Eerd, M.
Agache, I.
Ansotegui, I. J.
Bewick, M.
Casale, T.
Dykewick, M.
Ebisawa, M.
Murray, R.
Naclerio, R.
Okamoto, Y.
Wallace, D. V.
author_sort Bousquet, J.
collection PubMed
description AIMS: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. METHODS: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. STAKEHOLDERS: Include patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors. RESULTS: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU GRANTS (2018): MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). LESSONS LEARNT: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.
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spelling pubmed-64134442019-03-25 Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma Bousquet, J. Bedbrook, A. Czarlewski, W. Onorato, G. L. Arnavielhe, S. Laune, D. Mathieu-Dupas, E. Fonseca, J. Costa, E. Lourenço, O. Morais-Almeida, M. Todo-Bom, A. Illario, M. Menditto, E. Canonica, G. W. Cecchi, L. Monti, R. Napoli, L. Ventura, M. T. De Feo, G. Fokkens, W. J. Chavannes, N. H. Reitsma, S. Cruz, A. A. da Silva, J. Serpa, F. S. Larenas-Linnemann, D. Fuentes Perez, J. M. Huerta-Villalobos, Y. R. Rivero-Yeverino, D. Rodriguez-Zagal, E. Valiulis, A. Dubakiene, R. Emuzyte, R. Kvedariene, V. Annesi-Maesano, I. Blain, H. Bonniaud, P. Bosse, I. Dauvilliers, Y. Devillier, P. Fontaine, J. F. Pépin, J. L. Pham-Thi, N. Portejoie, F. Picard, R. Roche, N. Rolland, C. Schmidt-Grendelmeier, P. Kuna, P. Samolinski, B. Anto, J. M. Cardona, V. Mullol, J. Pinnock, H. Ryan, D. Sheikh, A. Walker, S. Williams, S. Becker, S. Klimek, L. Pfaar, O. Bergmann, K. C. Mösges, R. Zuberbier, T. Roller-Wirnsberger, R. E. Tomazic, P. V. Haahtela, T. Salimäki, J. Toppila-Salmi, S. Valovirta, E. Vasankari, T. Gemicioğlu, B. Yorgancioglu, A. Papadopoulos, N. G. Prokopakis, E. P. Tsiligianni, I. G. Bosnic-Anticevich, S. O’Hehir, R. Ivancevich, J. C. Neffen, H. Zernotti, M. E. Kull, I. Melén, E. Wickman, M. Bachert, C. Hellings, P. W. Brusselle, G. Palkonen, S. Bindslev-Jensen, C. Eller, E. Waserman, S. Boulet, L. P. Bouchard, J. Chu, D. K. Schünemann, H. J. Sova, M. De Vries, G. van Eerd, M. Agache, I. Ansotegui, I. J. Bewick, M. Casale, T. Dykewick, M. Ebisawa, M. Murray, R. Naclerio, R. Okamoto, Y. Wallace, D. V. Clin Transl Allergy Review AIMS: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. METHODS: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. STAKEHOLDERS: Include patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors. RESULTS: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU GRANTS (2018): MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). LESSONS LEARNT: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases. BioMed Central 2019-03-11 /pmc/articles/PMC6413444/ /pubmed/30911372 http://dx.doi.org/10.1186/s13601-019-0252-0 Text en © The Author(s) 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Review
Bousquet, J.
Bedbrook, A.
Czarlewski, W.
Onorato, G. L.
Arnavielhe, S.
Laune, D.
Mathieu-Dupas, E.
Fonseca, J.
Costa, E.
Lourenço, O.
Morais-Almeida, M.
Todo-Bom, A.
Illario, M.
Menditto, E.
Canonica, G. W.
Cecchi, L.
Monti, R.
Napoli, L.
Ventura, M. T.
De Feo, G.
Fokkens, W. J.
Chavannes, N. H.
Reitsma, S.
Cruz, A. A.
da Silva, J.
Serpa, F. S.
Larenas-Linnemann, D.
Fuentes Perez, J. M.
Huerta-Villalobos, Y. R.
Rivero-Yeverino, D.
Rodriguez-Zagal, E.
Valiulis, A.
Dubakiene, R.
Emuzyte, R.
Kvedariene, V.
Annesi-Maesano, I.
Blain, H.
Bonniaud, P.
Bosse, I.
Dauvilliers, Y.
Devillier, P.
Fontaine, J. F.
Pépin, J. L.
Pham-Thi, N.
Portejoie, F.
Picard, R.
Roche, N.
Rolland, C.
Schmidt-Grendelmeier, P.
Kuna, P.
Samolinski, B.
Anto, J. M.
Cardona, V.
Mullol, J.
Pinnock, H.
Ryan, D.
Sheikh, A.
Walker, S.
Williams, S.
Becker, S.
Klimek, L.
Pfaar, O.
Bergmann, K. C.
Mösges, R.
Zuberbier, T.
Roller-Wirnsberger, R. E.
Tomazic, P. V.
Haahtela, T.
Salimäki, J.
Toppila-Salmi, S.
Valovirta, E.
Vasankari, T.
Gemicioğlu, B.
Yorgancioglu, A.
Papadopoulos, N. G.
Prokopakis, E. P.
Tsiligianni, I. G.
Bosnic-Anticevich, S.
O’Hehir, R.
Ivancevich, J. C.
Neffen, H.
Zernotti, M. E.
Kull, I.
Melén, E.
Wickman, M.
Bachert, C.
Hellings, P. W.
Brusselle, G.
Palkonen, S.
Bindslev-Jensen, C.
Eller, E.
Waserman, S.
Boulet, L. P.
Bouchard, J.
Chu, D. K.
Schünemann, H. J.
Sova, M.
De Vries, G.
van Eerd, M.
Agache, I.
Ansotegui, I. J.
Bewick, M.
Casale, T.
Dykewick, M.
Ebisawa, M.
Murray, R.
Naclerio, R.
Okamoto, Y.
Wallace, D. V.
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
title Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
title_full Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
title_fullStr Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
title_full_unstemmed Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
title_short Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
title_sort guidance to 2018 good practice: aria digitally-enabled, integrated, person-centred care for rhinitis and asthma
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6413444/
https://www.ncbi.nlm.nih.gov/pubmed/30911372
http://dx.doi.org/10.1186/s13601-019-0252-0
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AT yorgancioglua guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT papadopoulosng guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT prokopakisep guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT tsiligianniig guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT bosnicanticevichs guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT ohehirr guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT ivancevichjc guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT neffenh guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT zernottime guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT kulli guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT melene guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT wickmanm guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT bachertc guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT hellingspw guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT brusselleg guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT palkonens guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT bindslevjensenc guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT ellere guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT wasermans guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT bouletlp guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT bouchardj guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT chudk guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT schunemannhj guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT sovam guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT devriesg guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT vaneerdm guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT agachei guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT ansoteguiij guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT bewickm guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT casalet guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT dykewickm guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT ebisawam guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT murrayr guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT naclerior guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT okamotoy guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT wallacedv guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma
AT guidanceto2018goodpracticeariadigitallyenabledintegratedpersoncentredcareforrhinitisandasthma