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Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey

BACKGROUND: The doctor-patient relationship has evolved to respect “the autonomy and patients’ rights”. One of the cornerstones in such autonomy is the opportunity for patients to draw living wills, also known as advance directives (AD). However, information about AD available to patients remains sc...

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Autores principales: Hubert, Sidonie, Wainschtein, Sarah, Hugues, Albane, Schimpf, Caroline, Degroote, Thècle, Tiercelet, Kelly, Tran, Marc, Bruel, Cédric, Philippart, Francois
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6423804/
https://www.ncbi.nlm.nih.gov/pubmed/30885169
http://dx.doi.org/10.1186/s12910-019-0358-x
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author Hubert, Sidonie
Wainschtein, Sarah
Hugues, Albane
Schimpf, Caroline
Degroote, Thècle
Tiercelet, Kelly
Tran, Marc
Bruel, Cédric
Philippart, Francois
author_facet Hubert, Sidonie
Wainschtein, Sarah
Hugues, Albane
Schimpf, Caroline
Degroote, Thècle
Tiercelet, Kelly
Tran, Marc
Bruel, Cédric
Philippart, Francois
author_sort Hubert, Sidonie
collection PubMed
description BACKGROUND: The doctor-patient relationship has evolved to respect “the autonomy and patients’ rights”. One of the cornerstones in such autonomy is the opportunity for patients to draw living wills, also known as advance directives (AD). However, information about AD available to patients remains scarce largely due to the lack of involvement of General practitioners for several reasons. The aim of our study was to evaluate current general practitioner residents’ (GPR) behavior concerning their role in informing their patients about AD. METHOD: We built a French nationwide survey from GPR class of 2012 to 2014. RESULTS: Two thousand three hundred ten residents completed our survey (21.1% of the total population of GPR during the period). 89.8% declared their willingness to offer patients the opportunity of writing AD. When asked about the usefulness of AD, 73.6% of residents responded that these are a suitable help for patients, but 19.7% considered that AD are essentially geared towards frail patients. Among residents who want to inform patients about AD (n = 2075), 14.7% wanted to involve all patients. Only 20.5% thought that elderly people should be systematically informed about AD. When the question involves other frail people in various disease areas, information seems relevant for 60.1% of GPR considering patient with cancer or malignant hematologic disease and for 56.2% about patients affected by neurodegenerative disease. When considering the routine use of AD, 20.5% of GPR would take them into account only if they are in agreement with the patient’s decision. CONCLUSIONS: The results of the survey indicate that GPR would rather choose to decide who should be informed about AD, and when to take AD into account for ethical concerns. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12910-019-0358-x) contains supplementary material, which is available to authorized users.
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spelling pubmed-64238042019-03-28 Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey Hubert, Sidonie Wainschtein, Sarah Hugues, Albane Schimpf, Caroline Degroote, Thècle Tiercelet, Kelly Tran, Marc Bruel, Cédric Philippart, Francois BMC Med Ethics Research Article BACKGROUND: The doctor-patient relationship has evolved to respect “the autonomy and patients’ rights”. One of the cornerstones in such autonomy is the opportunity for patients to draw living wills, also known as advance directives (AD). However, information about AD available to patients remains scarce largely due to the lack of involvement of General practitioners for several reasons. The aim of our study was to evaluate current general practitioner residents’ (GPR) behavior concerning their role in informing their patients about AD. METHOD: We built a French nationwide survey from GPR class of 2012 to 2014. RESULTS: Two thousand three hundred ten residents completed our survey (21.1% of the total population of GPR during the period). 89.8% declared their willingness to offer patients the opportunity of writing AD. When asked about the usefulness of AD, 73.6% of residents responded that these are a suitable help for patients, but 19.7% considered that AD are essentially geared towards frail patients. Among residents who want to inform patients about AD (n = 2075), 14.7% wanted to involve all patients. Only 20.5% thought that elderly people should be systematically informed about AD. When the question involves other frail people in various disease areas, information seems relevant for 60.1% of GPR considering patient with cancer or malignant hematologic disease and for 56.2% about patients affected by neurodegenerative disease. When considering the routine use of AD, 20.5% of GPR would take them into account only if they are in agreement with the patient’s decision. CONCLUSIONS: The results of the survey indicate that GPR would rather choose to decide who should be informed about AD, and when to take AD into account for ethical concerns. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12910-019-0358-x) contains supplementary material, which is available to authorized users. BioMed Central 2019-03-18 /pmc/articles/PMC6423804/ /pubmed/30885169 http://dx.doi.org/10.1186/s12910-019-0358-x Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Hubert, Sidonie
Wainschtein, Sarah
Hugues, Albane
Schimpf, Caroline
Degroote, Thècle
Tiercelet, Kelly
Tran, Marc
Bruel, Cédric
Philippart, Francois
Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey
title Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey
title_full Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey
title_fullStr Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey
title_full_unstemmed Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey
title_short Advance directives in France: do junior general practitioners want to improve their implementation and usage? A nationwide survey
title_sort advance directives in france: do junior general practitioners want to improve their implementation and usage? a nationwide survey
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6423804/
https://www.ncbi.nlm.nih.gov/pubmed/30885169
http://dx.doi.org/10.1186/s12910-019-0358-x
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