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Quality of life of parents and siblings of children with cochlear implants

OBJECTIVES: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). DESIGN: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and suppo...

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Autores principales: Umat, Cila, Abdul Wahat, Nor Haniza, Che Ross, Sakinah, Goh, Bee See
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Chinese PLA General Hospital 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6424712/
https://www.ncbi.nlm.nih.gov/pubmed/30936897
http://dx.doi.org/10.1016/j.joto.2018.11.004
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author Umat, Cila
Abdul Wahat, Nor Haniza
Che Ross, Sakinah
Goh, Bee See
author_facet Umat, Cila
Abdul Wahat, Nor Haniza
Che Ross, Sakinah
Goh, Bee See
author_sort Umat, Cila
collection PubMed
description OBJECTIVES: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). DESIGN: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and support for the hearing-impaired child and the overall QoL -- and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria. SETTING: The study was conducted under the Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur. PARTICIPANTS: A total of 79 parents and 23 siblings from 44 families of children with CI participated in this study. MAIN OUTCOME MEASURES: The mean score for each of the sub-domain and the overall QoL for both subject groups were computed. The answers for the open-ended questions were listed and organized into themes. RESULTS: There were significant correlations between the overall QoL score and each of the test domains for the parents' group (p < 0.01). For the siblings' group, only the interaction and support domains were significant. Interaction was the main sub-domain affecting the parents' QoL but for siblings, this could not be determined. A total of 60% of the pooled comments were classified as ‘concerns’. As for the suggestions, 38.7% requested some form of support, mainly financial (41.7%). CONCLUSIONS: Families with hearing impaired children with CI have numerous concerns that need to be addressed, even though, on average, they were satisfied with their overall QoL.
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spelling pubmed-64247122019-04-01 Quality of life of parents and siblings of children with cochlear implants Umat, Cila Abdul Wahat, Nor Haniza Che Ross, Sakinah Goh, Bee See J Otol Research Article OBJECTIVES: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). DESIGN: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and support for the hearing-impaired child and the overall QoL -- and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria. SETTING: The study was conducted under the Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur. PARTICIPANTS: A total of 79 parents and 23 siblings from 44 families of children with CI participated in this study. MAIN OUTCOME MEASURES: The mean score for each of the sub-domain and the overall QoL for both subject groups were computed. The answers for the open-ended questions were listed and organized into themes. RESULTS: There were significant correlations between the overall QoL score and each of the test domains for the parents' group (p < 0.01). For the siblings' group, only the interaction and support domains were significant. Interaction was the main sub-domain affecting the parents' QoL but for siblings, this could not be determined. A total of 60% of the pooled comments were classified as ‘concerns’. As for the suggestions, 38.7% requested some form of support, mainly financial (41.7%). CONCLUSIONS: Families with hearing impaired children with CI have numerous concerns that need to be addressed, even though, on average, they were satisfied with their overall QoL. Chinese PLA General Hospital 2019-03 2018-11-13 /pmc/articles/PMC6424712/ /pubmed/30936897 http://dx.doi.org/10.1016/j.joto.2018.11.004 Text en © 2019 PLA General Hospital Department of Otolaryngology Head and Neck Surgery. Production and hosting by Elsevier (Singapore) Pte Ltd. http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Research Article
Umat, Cila
Abdul Wahat, Nor Haniza
Che Ross, Sakinah
Goh, Bee See
Quality of life of parents and siblings of children with cochlear implants
title Quality of life of parents and siblings of children with cochlear implants
title_full Quality of life of parents and siblings of children with cochlear implants
title_fullStr Quality of life of parents and siblings of children with cochlear implants
title_full_unstemmed Quality of life of parents and siblings of children with cochlear implants
title_short Quality of life of parents and siblings of children with cochlear implants
title_sort quality of life of parents and siblings of children with cochlear implants
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6424712/
https://www.ncbi.nlm.nih.gov/pubmed/30936897
http://dx.doi.org/10.1016/j.joto.2018.11.004
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