Patient reported outcomes for preschool children with recurrent wheeze

Children with preschool wheeze regularly attend UK emergency departments. There is no international consensus on any specific personalised management approach. This paper describes the first attempt to co-design patient-centred outcomes with families. Preschool wheezers’ parents participated in semi...

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Autores principales: Heidi, Makrinioti, Emily, Keating, Benjamin, Holden, Michael, Coren, Robert, Klaber, Mitch, Blair, Chris, Griffiths, Mando, Watson, Andrew, Bush
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2019
Materias:
Brief Communication
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6435695/
https://www.ncbi.nlm.nih.gov/pubmed/30914646
http://dx.doi.org/10.1038/s41533-019-0120-3
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author Heidi, Makrinioti
Emily, Keating
Benjamin, Holden
Michael, Coren
Robert, Klaber
Mitch, Blair
Chris, Griffiths
Mando, Watson
Andrew, Bush
author_facet Heidi, Makrinioti
Emily, Keating
Benjamin, Holden
Michael, Coren
Robert, Klaber
Mitch, Blair
Chris, Griffiths
Mando, Watson
Andrew, Bush
author_sort Heidi, Makrinioti
collection PubMed
description Children with preschool wheeze regularly attend UK emergency departments. There is no international consensus on any specific personalised management approach. This paper describes the first attempt to co-design patient-centred outcomes with families. Preschool wheezers’ parents participated in semi-structured interviews and focus-group discussions to air their concerns and identify potential additional support. Fifty-seven families participated in these interviews. From these, themes were defined through qualitative content analysis. Parental experience was mapped to the patient pathway and seven important personalised outcomes were described. These can be used to inform a tool which following further validation could potentially support management of children with preschool wheeze and provide an additional patient focused clinical outcome measure in audit and research.
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spelling pubmed-64356952019-04-01 Patient reported outcomes for preschool children with recurrent wheeze Heidi, Makrinioti Emily, Keating Benjamin, Holden Michael, Coren Robert, Klaber Mitch, Blair Chris, Griffiths Mando, Watson Andrew, Bush NPJ Prim Care Respir Med Brief Communication Children with preschool wheeze regularly attend UK emergency departments. There is no international consensus on any specific personalised management approach. This paper describes the first attempt to co-design patient-centred outcomes with families. Preschool wheezers’ parents participated in semi-structured interviews and focus-group discussions to air their concerns and identify potential additional support. Fifty-seven families participated in these interviews. From these, themes were defined through qualitative content analysis. Parental experience was mapped to the patient pathway and seven important personalised outcomes were described. These can be used to inform a tool which following further validation could potentially support management of children with preschool wheeze and provide an additional patient focused clinical outcome measure in audit and research. Nature Publishing Group UK 2019-03-26 /pmc/articles/PMC6435695/ /pubmed/30914646 http://dx.doi.org/10.1038/s41533-019-0120-3 Text en © The Author(s) 2019 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/.
spellingShingle Brief Communication
Heidi, Makrinioti
Emily, Keating
Benjamin, Holden
Michael, Coren
Robert, Klaber
Mitch, Blair
Chris, Griffiths
Mando, Watson
Andrew, Bush
Patient reported outcomes for preschool children with recurrent wheeze
title Patient reported outcomes for preschool children with recurrent wheeze
title_full Patient reported outcomes for preschool children with recurrent wheeze
title_fullStr Patient reported outcomes for preschool children with recurrent wheeze
title_full_unstemmed Patient reported outcomes for preschool children with recurrent wheeze
title_short Patient reported outcomes for preschool children with recurrent wheeze
title_sort patient reported outcomes for preschool children with recurrent wheeze
topic Brief Communication
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6435695/
https://www.ncbi.nlm.nih.gov/pubmed/30914646
http://dx.doi.org/10.1038/s41533-019-0120-3
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