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Strategies for eliciting and synthesizing evidence for guidelines in rare diseases
BACKGROUND: Rare diseases are a global public health priority. Though each disease is rare, when taken together the thousands of known rare diseases cause significant morbidity and mortality, impact quality of life, and confer a social and economic burden on families and communities. These condition...
Autores principales: | , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6437842/ https://www.ncbi.nlm.nih.gov/pubmed/30922227 http://dx.doi.org/10.1186/s12874-019-0713-0 |