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Asthma patients’ perception on their care pathway: a qualitative study

Because of insufficient asthma control in many patients, the collaboration between stakeholders is regarded as a promising strategy to improve asthma outcomes. This study explored the perceptions of French adult asthma patients on their care pathway. We conducted a qualitative study based on the int...

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Autores principales: Hannane, Anissa, Misane, Lilia, Devouassoux, Gilles, Colin, Cyrille, Letrilliart, Laurent
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6445145/
https://www.ncbi.nlm.nih.gov/pubmed/30940806
http://dx.doi.org/10.1038/s41533-019-0121-2
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author Hannane, Anissa
Misane, Lilia
Devouassoux, Gilles
Colin, Cyrille
Letrilliart, Laurent
author_facet Hannane, Anissa
Misane, Lilia
Devouassoux, Gilles
Colin, Cyrille
Letrilliart, Laurent
author_sort Hannane, Anissa
collection PubMed
description Because of insufficient asthma control in many patients, the collaboration between stakeholders is regarded as a promising strategy to improve asthma outcomes. This study explored the perceptions of French adult asthma patients on their care pathway. We conducted a qualitative study based on the interviews of 30 asthma patients aged 18–40 years, recruited in French primary care. We performed a thematic analysis of the data collected, using the NVivo software. According to the patients, the stakeholders involved in asthma management included those visible to healthcare professionals (patient, general practitioner, specialist(s), pharmacist, physiotherapist, family and friends) and those concealed by the patients (complementary and alternative practitioners); other stakeholders, such as nurses and occupational physicians, were not involved. Asthma management at diagnosis and follow-up phases proved to be unstructured, and were associated with poor patient education. This was supported by patients’ ambivalence (in relation to illness and treatments), poor communication between patients and healthcare professionals (lack of listening and use of inappropriate vocabulary by physicians, underreporting of alternative medicine use by patients) and weak cooperation between professionals (limited to interaction between the general practitioner and the specialist, either pulmonologist or allergist). Asthma management would probably benefit from a more coordinated care pathway at each phase of the disease that is consistent with the expectations and goals of the patients. It should be based on improved organization (involvement of other healthcare professionals and the patient as partners) and processes (regular follow-up, specific tools such as peak flow meter or action plan).
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spelling pubmed-64451452019-04-08 Asthma patients’ perception on their care pathway: a qualitative study Hannane, Anissa Misane, Lilia Devouassoux, Gilles Colin, Cyrille Letrilliart, Laurent NPJ Prim Care Respir Med Article Because of insufficient asthma control in many patients, the collaboration between stakeholders is regarded as a promising strategy to improve asthma outcomes. This study explored the perceptions of French adult asthma patients on their care pathway. We conducted a qualitative study based on the interviews of 30 asthma patients aged 18–40 years, recruited in French primary care. We performed a thematic analysis of the data collected, using the NVivo software. According to the patients, the stakeholders involved in asthma management included those visible to healthcare professionals (patient, general practitioner, specialist(s), pharmacist, physiotherapist, family and friends) and those concealed by the patients (complementary and alternative practitioners); other stakeholders, such as nurses and occupational physicians, were not involved. Asthma management at diagnosis and follow-up phases proved to be unstructured, and were associated with poor patient education. This was supported by patients’ ambivalence (in relation to illness and treatments), poor communication between patients and healthcare professionals (lack of listening and use of inappropriate vocabulary by physicians, underreporting of alternative medicine use by patients) and weak cooperation between professionals (limited to interaction between the general practitioner and the specialist, either pulmonologist or allergist). Asthma management would probably benefit from a more coordinated care pathway at each phase of the disease that is consistent with the expectations and goals of the patients. It should be based on improved organization (involvement of other healthcare professionals and the patient as partners) and processes (regular follow-up, specific tools such as peak flow meter or action plan). Nature Publishing Group UK 2019-04-02 /pmc/articles/PMC6445145/ /pubmed/30940806 http://dx.doi.org/10.1038/s41533-019-0121-2 Text en © The Author(s) 2019 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/.
spellingShingle Article
Hannane, Anissa
Misane, Lilia
Devouassoux, Gilles
Colin, Cyrille
Letrilliart, Laurent
Asthma patients’ perception on their care pathway: a qualitative study
title Asthma patients’ perception on their care pathway: a qualitative study
title_full Asthma patients’ perception on their care pathway: a qualitative study
title_fullStr Asthma patients’ perception on their care pathway: a qualitative study
title_full_unstemmed Asthma patients’ perception on their care pathway: a qualitative study
title_short Asthma patients’ perception on their care pathway: a qualitative study
title_sort asthma patients’ perception on their care pathway: a qualitative study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6445145/
https://www.ncbi.nlm.nih.gov/pubmed/30940806
http://dx.doi.org/10.1038/s41533-019-0121-2
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