Cargando…

A systematic review of palliative care tools and interventions for people with severe mental illness

BACKGROUND: Increasing attention to palliative care for the general population has led to the development of various evidence-based or consensus-based tools and interventions. However, specific tools and interventions are needed for people with severe mental illness (SMI) who have a life-threatening...

Descripción completa

Detalles Bibliográficos
Autores principales: den Boer, Karin, de Veer, Anke J. E., Schoonmade, Linda J., Verhaegh, Kim J., van Meijel, Berno, Francke, Anneke L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6446277/
https://www.ncbi.nlm.nih.gov/pubmed/30943927
http://dx.doi.org/10.1186/s12888-019-2078-7
_version_ 1783408329656107008
author den Boer, Karin
de Veer, Anke J. E.
Schoonmade, Linda J.
Verhaegh, Kim J.
van Meijel, Berno
Francke, Anneke L.
author_facet den Boer, Karin
de Veer, Anke J. E.
Schoonmade, Linda J.
Verhaegh, Kim J.
van Meijel, Berno
Francke, Anneke L.
author_sort den Boer, Karin
collection PubMed
description BACKGROUND: Increasing attention to palliative care for the general population has led to the development of various evidence-based or consensus-based tools and interventions. However, specific tools and interventions are needed for people with severe mental illness (SMI) who have a life-threatening illness. The aim of this systematic review is to summarize the scientific evidence on tools and interventions in palliative care for this group. METHODS: Systematic searches were done in the PubMed, Cochrane Library, CINAHL, PsycINFO and Embase databases, supplemented by reference tracking, searches on the internet with free text terms, and consultations with experts to identify relevant literature. Empirical studies with qualitative, quantitative or mixed-methods designs concerning tools and interventions for use in palliative care for people with SMI were included. Methodological quality was assessed using a critical appraisal instrument for heterogeneous study designs. Stepwise study selection and the assessment of methodological quality were done independently by two review authors. RESULTS: Four studies were included, reporting on a total of two tools and one multi-component intervention. One study concerned a tool to identify the palliative phase in patients with SMI. This tool appeared to be usable only in people with SMI with a cancer diagnosis. Furthermore, two related studies focused on a tool to involve people with SMI in discussions about medical decisions at the end of life. This tool was assessed as feasible and usable in the target group. One other study concerned the Dutch national Care Standard for palliative care, including a multi-component intervention. The Palliative Care Standard also appeared to be feasible and usable in a mental healthcare setting, but required further tailoring to suit this specific setting. None of the included studies investigated the effects of the tools and interventions on quality of life or quality of care. CONCLUSIONS: Studies of palliative care tools and interventions for people with SMI are scarce. The existent tools and intervention need further development and should be tailored to the care needs and settings of these people. Further research is needed on the feasibility, usability and effects of tools and interventions for palliative care for people with SMI. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12888-019-2078-7) contains supplementary material, which is available to authorized users.
format Online
Article
Text
id pubmed-6446277
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-64462772019-04-12 A systematic review of palliative care tools and interventions for people with severe mental illness den Boer, Karin de Veer, Anke J. E. Schoonmade, Linda J. Verhaegh, Kim J. van Meijel, Berno Francke, Anneke L. BMC Psychiatry Research Article BACKGROUND: Increasing attention to palliative care for the general population has led to the development of various evidence-based or consensus-based tools and interventions. However, specific tools and interventions are needed for people with severe mental illness (SMI) who have a life-threatening illness. The aim of this systematic review is to summarize the scientific evidence on tools and interventions in palliative care for this group. METHODS: Systematic searches were done in the PubMed, Cochrane Library, CINAHL, PsycINFO and Embase databases, supplemented by reference tracking, searches on the internet with free text terms, and consultations with experts to identify relevant literature. Empirical studies with qualitative, quantitative or mixed-methods designs concerning tools and interventions for use in palliative care for people with SMI were included. Methodological quality was assessed using a critical appraisal instrument for heterogeneous study designs. Stepwise study selection and the assessment of methodological quality were done independently by two review authors. RESULTS: Four studies were included, reporting on a total of two tools and one multi-component intervention. One study concerned a tool to identify the palliative phase in patients with SMI. This tool appeared to be usable only in people with SMI with a cancer diagnosis. Furthermore, two related studies focused on a tool to involve people with SMI in discussions about medical decisions at the end of life. This tool was assessed as feasible and usable in the target group. One other study concerned the Dutch national Care Standard for palliative care, including a multi-component intervention. The Palliative Care Standard also appeared to be feasible and usable in a mental healthcare setting, but required further tailoring to suit this specific setting. None of the included studies investigated the effects of the tools and interventions on quality of life or quality of care. CONCLUSIONS: Studies of palliative care tools and interventions for people with SMI are scarce. The existent tools and intervention need further development and should be tailored to the care needs and settings of these people. Further research is needed on the feasibility, usability and effects of tools and interventions for palliative care for people with SMI. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12888-019-2078-7) contains supplementary material, which is available to authorized users. BioMed Central 2019-04-03 /pmc/articles/PMC6446277/ /pubmed/30943927 http://dx.doi.org/10.1186/s12888-019-2078-7 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
den Boer, Karin
de Veer, Anke J. E.
Schoonmade, Linda J.
Verhaegh, Kim J.
van Meijel, Berno
Francke, Anneke L.
A systematic review of palliative care tools and interventions for people with severe mental illness
title A systematic review of palliative care tools and interventions for people with severe mental illness
title_full A systematic review of palliative care tools and interventions for people with severe mental illness
title_fullStr A systematic review of palliative care tools and interventions for people with severe mental illness
title_full_unstemmed A systematic review of palliative care tools and interventions for people with severe mental illness
title_short A systematic review of palliative care tools and interventions for people with severe mental illness
title_sort systematic review of palliative care tools and interventions for people with severe mental illness
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6446277/
https://www.ncbi.nlm.nih.gov/pubmed/30943927
http://dx.doi.org/10.1186/s12888-019-2078-7
work_keys_str_mv AT denboerkarin asystematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT deveerankeje asystematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT schoonmadelindaj asystematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT verhaeghkimj asystematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT vanmeijelberno asystematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT franckeannekel asystematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT denboerkarin systematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT deveerankeje systematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT schoonmadelindaj systematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT verhaeghkimj systematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT vanmeijelberno systematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness
AT franckeannekel systematicreviewofpalliativecaretoolsandinterventionsforpeoplewithseverementalillness