“Getting ready for the adult world”: how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being

BACKGROUND: Spinal muscular atrophy (SMA) has profound implications across a lifetime for people with the condition and their families. Those affected need long-term multidisciplinary medical and supportive care to maintain functional mobility, independence and quality of life. Little is known about...

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Detalles Bibliográficos
Autores principales: Wan, Hamish W. Y., Carey, Kate A., D’Silva, Arlene, Kasparian, Nadine A., Farrar, Michelle A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6446316/
https://www.ncbi.nlm.nih.gov/pubmed/30940178
http://dx.doi.org/10.1186/s13023-019-1052-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6446316/
https://www.ncbi.nlm.nih.gov/pubmed/30940178
http://dx.doi.org/10.1186/s13023-019-1052-2

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