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Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature

Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed...

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Detalles Bibliográficos
Autores principales: Stedman, Amy, Taylor, Briana, Erard, Michael, Peura, Christine, Siegel, Matthew
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6450830/
https://www.ncbi.nlm.nih.gov/pubmed/30536112
http://dx.doi.org/10.1007/s10803-018-3844-y
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author Stedman, Amy
Taylor, Briana
Erard, Michael
Peura, Christine
Siegel, Matthew
author_facet Stedman, Amy
Taylor, Briana
Erard, Michael
Peura, Christine
Siegel, Matthew
author_sort Stedman, Amy
collection PubMed
description Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991–2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need.
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spelling pubmed-64508302019-04-17 Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature Stedman, Amy Taylor, Briana Erard, Michael Peura, Christine Siegel, Matthew J Autism Dev Disord Original Paper Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991–2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. Springer US 2018-12-10 2019 /pmc/articles/PMC6450830/ /pubmed/30536112 http://dx.doi.org/10.1007/s10803-018-3844-y Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Original Paper
Stedman, Amy
Taylor, Briana
Erard, Michael
Peura, Christine
Siegel, Matthew
Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
title Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
title_full Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
title_fullStr Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
title_full_unstemmed Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
title_short Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
title_sort are children severely affected by autism spectrum disorder underrepresented in treatment studies? an analysis of the literature
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6450830/
https://www.ncbi.nlm.nih.gov/pubmed/30536112
http://dx.doi.org/10.1007/s10803-018-3844-y
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