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Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature
Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6450830/ https://www.ncbi.nlm.nih.gov/pubmed/30536112 http://dx.doi.org/10.1007/s10803-018-3844-y |
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author | Stedman, Amy Taylor, Briana Erard, Michael Peura, Christine Siegel, Matthew |
author_facet | Stedman, Amy Taylor, Briana Erard, Michael Peura, Christine Siegel, Matthew |
author_sort | Stedman, Amy |
collection | PubMed |
description | Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991–2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. |
format | Online Article Text |
id | pubmed-6450830 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Springer US |
record_format | MEDLINE/PubMed |
spelling | pubmed-64508302019-04-17 Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature Stedman, Amy Taylor, Briana Erard, Michael Peura, Christine Siegel, Matthew J Autism Dev Disord Original Paper Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991–2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. Springer US 2018-12-10 2019 /pmc/articles/PMC6450830/ /pubmed/30536112 http://dx.doi.org/10.1007/s10803-018-3844-y Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. |
spellingShingle | Original Paper Stedman, Amy Taylor, Briana Erard, Michael Peura, Christine Siegel, Matthew Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature |
title | Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature |
title_full | Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature |
title_fullStr | Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature |
title_full_unstemmed | Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature |
title_short | Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature |
title_sort | are children severely affected by autism spectrum disorder underrepresented in treatment studies? an analysis of the literature |
topic | Original Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6450830/ https://www.ncbi.nlm.nih.gov/pubmed/30536112 http://dx.doi.org/10.1007/s10803-018-3844-y |
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