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Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria

OBJECTIVES: Phenylketonuria (PKU) is a genetic disease of children that need a lifelong diet for its treatment. Because of the high burden of care, parents and particularly mothers are prone to mental disorders or psychiatric adverse reactions. We aimed to investigate the effect of empowerment of mo...

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Autores principales: RAHGOI, Abolfazl, SOJOODI, Tahere, FALLAHI KHOSHKNAB, Masoud, RAHGOZAR, Mehdi, SHAHSHAHANI, Soheila
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Shahid Beheshti University of Medical Sciences 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6451866/
https://www.ncbi.nlm.nih.gov/pubmed/31037078
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author RAHGOI, Abolfazl
SOJOODI, Tahere
FALLAHI KHOSHKNAB, Masoud
RAHGOZAR, Mehdi
SHAHSHAHANI, Soheila
author_facet RAHGOI, Abolfazl
SOJOODI, Tahere
FALLAHI KHOSHKNAB, Masoud
RAHGOZAR, Mehdi
SHAHSHAHANI, Soheila
author_sort RAHGOI, Abolfazl
collection PubMed
description OBJECTIVES: Phenylketonuria (PKU) is a genetic disease of children that need a lifelong diet for its treatment. Because of the high burden of care, parents and particularly mothers are prone to mental disorders or psychiatric adverse reactions. We aimed to investigate the effect of empowerment of mothers on the burden of caring for children with PKU. MATERIALS & METHODS: This was a semi-experimental (before-after with control group) study. Overall, 50 mothers of children with PKU that were referred to Endocrine Clinic in Qods Hospital of Qazvin City, northwestern Iran in 2016, were selected and randomly divided into intervention and control groups. Data collection was made by using demographic characteristics of mothers and children and also the Zarit burden interview questionnaires. Empowerment program was delivered during nine sessions of holistic and family oriented empowerment model in the intervention group. The control group received routine services. Data were analyzed using descriptive and inferential statistics through SPSS software. RESULTS: In intervention group, the mean score of overall care burden and its dimensions in the mothers of children with PKU in post-test was significantly lower than the pre-test (41.20 ± 5.04 vs. 58.24 ± 3.96; P<0.001); but pre-test and post-test scores in the control group had no significant difference (58.4 ± 5.22 vs. 58.96 ± 4; P=0.327). In other words empowerment program was able to reduce the burden of caring in mothers. CONCLUSION: Empowerment program can reduce the burden of care in mothers of children with PKU. Thus empowerment training is necessary for this group of mothers in the form of workshops and educational pamphlets.
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spelling pubmed-64518662019-06-01 Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria RAHGOI, Abolfazl SOJOODI, Tahere FALLAHI KHOSHKNAB, Masoud RAHGOZAR, Mehdi SHAHSHAHANI, Soheila Iran J Child Neurol Original Article OBJECTIVES: Phenylketonuria (PKU) is a genetic disease of children that need a lifelong diet for its treatment. Because of the high burden of care, parents and particularly mothers are prone to mental disorders or psychiatric adverse reactions. We aimed to investigate the effect of empowerment of mothers on the burden of caring for children with PKU. MATERIALS & METHODS: This was a semi-experimental (before-after with control group) study. Overall, 50 mothers of children with PKU that were referred to Endocrine Clinic in Qods Hospital of Qazvin City, northwestern Iran in 2016, were selected and randomly divided into intervention and control groups. Data collection was made by using demographic characteristics of mothers and children and also the Zarit burden interview questionnaires. Empowerment program was delivered during nine sessions of holistic and family oriented empowerment model in the intervention group. The control group received routine services. Data were analyzed using descriptive and inferential statistics through SPSS software. RESULTS: In intervention group, the mean score of overall care burden and its dimensions in the mothers of children with PKU in post-test was significantly lower than the pre-test (41.20 ± 5.04 vs. 58.24 ± 3.96; P<0.001); but pre-test and post-test scores in the control group had no significant difference (58.4 ± 5.22 vs. 58.96 ± 4; P=0.327). In other words empowerment program was able to reduce the burden of caring in mothers. CONCLUSION: Empowerment program can reduce the burden of care in mothers of children with PKU. Thus empowerment training is necessary for this group of mothers in the form of workshops and educational pamphlets. Shahid Beheshti University of Medical Sciences 2019 /pmc/articles/PMC6451866/ /pubmed/31037078 Text en This is an Open Access article distributed under the terms of the Creative Commons Attribution License, (http://creativecommons.org/licenses/by/3.0/) which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
RAHGOI, Abolfazl
SOJOODI, Tahere
FALLAHI KHOSHKNAB, Masoud
RAHGOZAR, Mehdi
SHAHSHAHANI, Soheila
Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria
title Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria
title_full Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria
title_fullStr Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria
title_full_unstemmed Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria
title_short Effects of Empowerment Program on the Burden of Care in Mothers of Children with Phenylketonuria
title_sort effects of empowerment program on the burden of care in mothers of children with phenylketonuria
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6451866/
https://www.ncbi.nlm.nih.gov/pubmed/31037078
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