Cargando…
Return of individual genomic research results: are laws and policies keeping step?
Efforts are underway to harmonise the return of individual results and incidental findings from whole genome sequencing (WGS) across research contexts and countries. We reviewed international, regional and national laws and policies applying to return across 20 countries to identify areas of converg...
Autores principales: | Thorogood, Adrian, Dalpé, Gratien, Knoppers, Bartha Maria |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6460582/ https://www.ncbi.nlm.nih.gov/pubmed/30622328 http://dx.doi.org/10.1038/s41431-018-0311-3 |
Ejemplares similares
-
A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research
por: Dalpé, Gratien, et al.
Publicado: (2019) -
An international policy on returning genomic research results
por: Lewis, Anna C. F., et al.
Publicado: (2021) -
Population studies: return of research results and incidental findings Policy Statement
por: Knoppers, Bartha Maria, et al.
Publicado: (2013) -
An implementation framework for the feedback of individual research results and incidental findings in research
por: Thorogood, Adrian, et al.
Publicado: (2014) -
The Human Genome Organisation: towards next-generation ethics
por: Knoppers, Bartha Maria, et al.
Publicado: (2013)