Cargando…

GP attitudes to and expectations for providing personal genomic risk information to the public: a qualitative study

BACKGROUND: As part of a pilot randomised controlled trial examining the impact of personal melanoma genomic risk information on behavioural and psychosocial outcomes, GPs were sent a booklet containing their patient’s genomic risk of melanoma. AIM: Using this booklet as an example of genomic risk i...

Descripción completa

Detalles Bibliográficos
Autores principales:	Smit, Amelia K, Newson, Ainsley J, Keogh, Louise, Best, Megan, Dunlop, Kate, Vuong, Kylie, Kirk, Judy, Butow, Phyllis, Trevena, Lyndal, Cust, Anne E
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Royal College of General Practitioners 2019
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6480852/ https://www.ncbi.nlm.nih.gov/pubmed/31049413 http://dx.doi.org/10.3399/bjgpopen18X101633

Ejemplares similares

Public preferences for communicating personal genomic risk information: a focus group study
por: Smit, Amelia K., et al.
Publicado: (2015)

Implementation considerations for offering personal genomic risk information to the public: a qualitative study
por: Smit, Amelia K., et al.
Publicado: (2020)

Acceptability of risk‐stratified population screening across cancer types: Qualitative interviews with the Australian public
por: Dunlop, Kate, et al.
Publicado: (2021)

Feasibility of a GP delivered skin cancer prevention intervention in Australia
por: Vuong, Kylie, et al.
Publicado: (2014)

Impact of personal genomic risk information on melanoma prevention behaviors and psychological outcomes: a randomized controlled trial
por: Smit, Amelia K., et al.
Publicado: (2021)

Motivations and Barriers to Participation in a Randomized Trial on Melanoma Genomic Risk: A Mixed-Methods Analysis
por: Mercado, Gabriela, et al.
Publicado: (2022)

Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers
por: Best, Megan, et al.
Publicado: (2016)

Patient perspectives on molecular tumor profiling: “Why wouldn’t you?”
por: Best, Megan C., et al.
Publicado: (2019)

There’s an App for That: A Guide for Healthcare Practitioners and Researchers on Smartphone Technology
por: Trevena, Lyndal
Publicado: (2015)

Patient experience of uncertainty in cancer genomics: a systematic review
por: Bartley, Nicci, et al.
Publicado: (2020)

Disclosure to genetic relatives without consent – Australian genetic professionals’ awareness of the health privacy law
por: Meggiolaro, Natalia, et al.
Publicado: (2020)

Exploring the expectations, experiences and tensions of refugee patients and general practitioners in the quality of care in general practice
por: Patel, Pinika, et al.
Publicado: (2021)

The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling
por: Best, Megan, et al.
Publicado: (2018)

The PiGeOn project: protocol of a longitudinal study examining psychosocial and ethical issues and outcomes in germline genomic sequencing for cancer
por: Best, Megan, et al.
Publicado: (2018)

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing
por: Savard, Jacqueline, et al.
Publicado: (2019)

Advanced Cancer Patient Knowledge of and Attitudes towards Tumor Molecular Profiling
por: Davies, Grace, et al.
Publicado: (2020)

Preferences for return of germline genome sequencing results for cancer patients and their genetic relatives in a research setting
por: Best, Megan C., et al.
Publicado: (2022)

Implementing what works: a case study of integrated primary health care revitalisation in Timor-Leste
por: Martins, Nelson, et al.
Publicado: (2014)

Interventions to improve participation in health‐care decisions in non‐Western countries: A systematic review and narrative synthesis
por: Dolan, Hankiz, et al.
Publicado: (2019)

Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model(®) intervention in a primary health‐care setting
por: Shepherd, Heather L, et al.
Publicado: (2015)

Validation of the multidimensional impact of Cancer Risk Assessment Questionnaire to assess impact of waiting for genome sequencing results
por: Best, Megan, et al.
Publicado: (2022)

Communicating Personal Melanoma Polygenic Risk Information: Participants’ Experiences of Genetic Counseling in a Community-Based Study
por: Smit, Amelia K., et al.
Publicado: (2022)

Psychoeducational intervention for people at high risk of developing another melanoma: a pilot randomised controlled trial
por: Dieng, Mbathio, et al.
Publicado: (2017)

Biological age calculators to motivate lifestyle change: Environmental scan of online tools and evaluation of behaviour change techniques
por: Bonner, Carissa, et al.
Publicado: (2022)

A decision aid to support informed choices about bowel cancer screening among adults with low education: randomised controlled trial
por: Smith, Sian K, et al.
Publicado: (2010)

GP Online: turning expectations into reality with the new NHS app
por: Beaney, Paul, et al.
Publicado: (2019)

A systematic literature review of researchers’ and healthcare professionals’ attitudes towards the secondary use and sharing of health administrative and clinical trial data
por: Hutchings, Elizabeth, et al.
Publicado: (2020)

A systematic literature review of attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on consent
por: Hutchings, Elizabeth, et al.
Publicado: (2021)

Who Uses Smoking Cessation Apps? A Feasibility Study Across Three Countries via Smartphones
por: BinDhim, Nasser F, et al.
Publicado: (2014)

Assessing the effect of an interactive decision-aid smartphone smoking cessation application (app) on quit rates: a double-blind automated randomised control trial protocol
por: BinDhim, Nasser F, et al.
Publicado: (2014)

Smartphone Smoking Cessation Application (SSC App) trial: a multicountry double-blind automated randomised controlled trial of a smoking cessation decision-aid ‘app’
por: BinDhim, Nasser F, et al.
Publicado: (2018)

A systematic literature review of health consumer attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on privacy, trust, and transparency
por: Hutchings, Elizabeth, et al.
Publicado: (2020)

The expectations and realities of nutrigenomic testing in australia: A qualitative study
por: Tutty, Erin, et al.
Publicado: (2021)

The experiences and needs of Australian medical oncologists in integrating comprehensive genomic profiling into clinical care: a nation-wide survey
por: Thavaneswaran, Subotheni, et al.
Publicado: (2021)

The Melanoma Genomics Managing Your Risk Study randomised controlled trial: statistical analysis plan
por: Lo, Serigne N., et al.
Publicado: (2020)

The Melanoma care study: protocol of a randomised controlled trial of a psycho-educational intervention for melanoma survivors at high risk of developing new primary disease
por: Dieng, Mbathio, et al.
Publicado: (2015)

Clinical Validity, Understandability, and Actionability of Online Cardiovascular Disease Risk Calculators: Systematic Review
por: Bonner, Carissa, et al.
Publicado: (2018)

Online decision aids for primary cardiovascular disease prevention: systematic search, evaluation of quality and suitability for low health literacy patients
por: Bonner, Carissa, et al.
Publicado: (2019)

Exploring the Vast Choice of Question Prompt Lists Available to Health Consumers via Google: Environmental Scan
por: Tracy, Marguerite Clare, et al.
Publicado: (2020)

Communication Experiences in Primary Healthcare with Refugees and Asylum Seekers: A Literature Review and Narrative Synthesis
por: Patel, Pinika, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_79190puqkb9q1r2savm673eqq3