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Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation

IMPORTANCE: Inadequate privacy disclosures have repeatedly been identified by cross-sectional surveys of health applications (apps), including apps for mental health and behavior change. However, few studies have assessed directly the correspondence between privacy disclosures and how apps handle pe...

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Autores principales: Huckvale, Kit, Torous, John, Larsen, Mark E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: American Medical Association 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6481440/
https://www.ncbi.nlm.nih.gov/pubmed/31002321
http://dx.doi.org/10.1001/jamanetworkopen.2019.2542
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author Huckvale, Kit
Torous, John
Larsen, Mark E.
author_facet Huckvale, Kit
Torous, John
Larsen, Mark E.
author_sort Huckvale, Kit
collection PubMed
description IMPORTANCE: Inadequate privacy disclosures have repeatedly been identified by cross-sectional surveys of health applications (apps), including apps for mental health and behavior change. However, few studies have assessed directly the correspondence between privacy disclosures and how apps handle personal data. Understanding the scope of this discrepancy is particularly important in mental health, given enhanced privacy concerns relating to stigma and negative impacts of inadvertent disclosure. Because most health apps fall outside government regulation, up-to-date technical scrutiny is essential for informed decision making by consumers and health care professionals wishing to prescribe health apps. OBJECTIVE: To provide a contemporary assessment of the privacy practices of popular apps for depression and smoking cessation by critically evaluating privacy policy content and, specifically, comparing disclosures regarding third-party data transmission to actual behavior. DESIGN AND SETTING: Cross-sectional assessment of 36 top-ranked (by app store search result ordering in January 2018) apps for depression and smoking cessation for Android and iOS in the United States and Australia. Privacy policy content was evaluated with prespecified criteria. Technical assessment of encrypted and unencrypted data transmission was performed. Analysis took place between April and June 2018. MAIN OUTCOMES AND MEASURES: Correspondence between policies and transmission behavior observed by intercepting sent data. RESULTS: Twenty-five of 36 apps (69%) incorporated a privacy policy. Twenty-two of 25 apps with a policy (88%) provided information about primary uses of collected data, while only 16 (64%) described secondary uses. While 23 of 25 apps with a privacy policy (92%) stated in a policy that data would be transmitted to a third party, transmission was detected in 33 of all 36 apps (92%). Twenty-nine of 36 apps (81%) transmitted data for advertising and marketing purposes or analytics to just 2 commercial entities, Google and Facebook, but only 12 of 28 (43%) transmitting data to Google and 6 of 12 (50%) transmitting data to Facebook disclosed this. CONCLUSIONS AND RELEVANCE: Data sharing with third parties that includes linkable identifiers is prevalent and focused on services provided by Google and Facebook. Despite this, most apps offer users no way to anticipate that data will be shared in this way. As a result, users are denied an informed choice about whether such sharing is acceptable to them. Privacy assessments that rely solely on disclosures made in policies, or are not regularly updated, are unlikely to uncover these evolving issues. This may limit their ability to offer effective guidance to consumers and health care professionals.
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spelling pubmed-64814402019-05-03 Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation Huckvale, Kit Torous, John Larsen, Mark E. JAMA Netw Open Original Investigation IMPORTANCE: Inadequate privacy disclosures have repeatedly been identified by cross-sectional surveys of health applications (apps), including apps for mental health and behavior change. However, few studies have assessed directly the correspondence between privacy disclosures and how apps handle personal data. Understanding the scope of this discrepancy is particularly important in mental health, given enhanced privacy concerns relating to stigma and negative impacts of inadvertent disclosure. Because most health apps fall outside government regulation, up-to-date technical scrutiny is essential for informed decision making by consumers and health care professionals wishing to prescribe health apps. OBJECTIVE: To provide a contemporary assessment of the privacy practices of popular apps for depression and smoking cessation by critically evaluating privacy policy content and, specifically, comparing disclosures regarding third-party data transmission to actual behavior. DESIGN AND SETTING: Cross-sectional assessment of 36 top-ranked (by app store search result ordering in January 2018) apps for depression and smoking cessation for Android and iOS in the United States and Australia. Privacy policy content was evaluated with prespecified criteria. Technical assessment of encrypted and unencrypted data transmission was performed. Analysis took place between April and June 2018. MAIN OUTCOMES AND MEASURES: Correspondence between policies and transmission behavior observed by intercepting sent data. RESULTS: Twenty-five of 36 apps (69%) incorporated a privacy policy. Twenty-two of 25 apps with a policy (88%) provided information about primary uses of collected data, while only 16 (64%) described secondary uses. While 23 of 25 apps with a privacy policy (92%) stated in a policy that data would be transmitted to a third party, transmission was detected in 33 of all 36 apps (92%). Twenty-nine of 36 apps (81%) transmitted data for advertising and marketing purposes or analytics to just 2 commercial entities, Google and Facebook, but only 12 of 28 (43%) transmitting data to Google and 6 of 12 (50%) transmitting data to Facebook disclosed this. CONCLUSIONS AND RELEVANCE: Data sharing with third parties that includes linkable identifiers is prevalent and focused on services provided by Google and Facebook. Despite this, most apps offer users no way to anticipate that data will be shared in this way. As a result, users are denied an informed choice about whether such sharing is acceptable to them. Privacy assessments that rely solely on disclosures made in policies, or are not regularly updated, are unlikely to uncover these evolving issues. This may limit their ability to offer effective guidance to consumers and health care professionals. American Medical Association 2019-04-19 /pmc/articles/PMC6481440/ /pubmed/31002321 http://dx.doi.org/10.1001/jamanetworkopen.2019.2542 Text en Copyright 2019 Huckvale K et al. JAMA Network Open. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the CC-BY License.
spellingShingle Original Investigation
Huckvale, Kit
Torous, John
Larsen, Mark E.
Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
title Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
title_full Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
title_fullStr Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
title_full_unstemmed Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
title_short Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
title_sort assessment of the data sharing and privacy practices of smartphone apps for depression and smoking cessation
topic Original Investigation
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6481440/
https://www.ncbi.nlm.nih.gov/pubmed/31002321
http://dx.doi.org/10.1001/jamanetworkopen.2019.2542
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