Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research

BACKGROUND: Data-intensive research in medicine and healthcare such as health-related big data research (HBDR) implies that data from clinical routine, research and patient-reported data, but also non-medical social or demographic data, are aggregated and linked in order to optimize biomedical resea...

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Detalles Bibliográficos
Autores principales: Beier, Katharina, Schweda, Mark, Schicktanz, Silke
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Debate
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6482526/
https://www.ncbi.nlm.nih.gov/pubmed/31023321
http://dx.doi.org/10.1186/s12911-019-0799-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6482526/
https://www.ncbi.nlm.nih.gov/pubmed/31023321
http://dx.doi.org/10.1186/s12911-019-0799-7

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