Cargando…
Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research
BACKGROUND: Data-intensive research in medicine and healthcare such as health-related big data research (HBDR) implies that data from clinical routine, research and patient-reported data, but also non-medical social or demographic data, are aggregated and linked in order to optimize biomedical resea...
| Autores principales: | , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2019
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6482526/ https://www.ncbi.nlm.nih.gov/pubmed/31023321 http://dx.doi.org/10.1186/s12911-019-0799-7 |