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A novel metadata management model to capture consent for record linkage in longitudinal research studies

Background: Informed consent is an important feature of longitudinal research studies as it enables the linking of the baseline participant information with administrative data. The lack of standardized models to capture consent elements can lead to substantial challenges. A structured approach to c...

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Detalles Bibliográficos
Autores principales: McMahon, Christiana, Denaxas, Spiros
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taylor & Francis 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6484449/
https://www.ncbi.nlm.nih.gov/pubmed/29106808
http://dx.doi.org/10.1080/17538157.2017.1364251

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