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A novel metadata management model to capture consent for record linkage in longitudinal research studies
Background: Informed consent is an important feature of longitudinal research studies as it enables the linking of the baseline participant information with administrative data. The lack of standardized models to capture consent elements can lead to substantial challenges. A structured approach to c...
Autores principales: | McMahon, Christiana, Denaxas, Spiros |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Taylor & Francis
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6484449/ https://www.ncbi.nlm.nih.gov/pubmed/29106808 http://dx.doi.org/10.1080/17538157.2017.1364251 |
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