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Newborn screening for haemophilia: The views of families and adults living with haemophilia in the UK

INTRODUCTION: As genomic sequencing become more efficient and cost‐effective, the number of conditions identified through newborn screening globally is set to dramatically increase. Haemophilia is a candidate condition; however, very little is known about the attitudes of the haemophilia community t...

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Detalles Bibliográficos
Autores principales: Boardman, Felicity K., Hale, Rachel, Young, Philip J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6487806/
https://www.ncbi.nlm.nih.gov/pubmed/30817064
http://dx.doi.org/10.1111/hae.13706