Cargando…
Information needs of physicians regarding the diagnosis of rare diseases: a questionnaire-based study in Belgium
BACKGROUND: Late and misdiagnoses of rare disease patients are common and often result in medical, physical and mental burden for the patient, and financial and emotional burden for the patient’s family. Low rare disease awareness among physicians is believed to be one of the reasons for these late...
Autores principales: | Vandeborne, Liese, van Overbeeke, Eline, Dooms, Marc, De Beleyr, Birgit, Huys, Isabelle |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6500578/ https://www.ncbi.nlm.nih.gov/pubmed/31054581 http://dx.doi.org/10.1186/s13023-019-1075-8 |
Ejemplares similares
-
Biosimilar Use and Switching in Belgium: Avenues for Integrated Policymaking
por: Barbier, Liese, et al.
Publicado: (2022) -
How to balance valuable innovation with affordable access to medicines in Belgium?
por: Simoens, Steven, et al.
Publicado: (2022) -
Patient Involvement in the Lifecycle of Medicines According to Belgian Stakeholders: The Gap Between Theory and Practice
por: Janssens, Rosanne, et al.
Publicado: (2018) -
Patient perspectives regarding gene therapy in haemophilia: Interviews from the PAVING study
por: van Overbeeke, Eline, et al.
Publicado: (2020) -
Use of Patient Preferences in Health Technology Assessment: Perspectives of Canadian, Belgian and German HTA Representatives
por: van Overbeeke, Eline, et al.
Publicado: (2020)