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Information needs of physicians regarding the diagnosis of rare diseases: a questionnaire-based study in Belgium

BACKGROUND: Late and misdiagnoses of rare disease patients are common and often result in medical, physical and mental burden for the patient, and financial and emotional burden for the patient’s family. Low rare disease awareness among physicians is believed to be one of the reasons for these late...

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Detalles Bibliográficos
Autores principales: Vandeborne, Liese, van Overbeeke, Eline, Dooms, Marc, De Beleyr, Birgit, Huys, Isabelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6500578/
https://www.ncbi.nlm.nih.gov/pubmed/31054581
http://dx.doi.org/10.1186/s13023-019-1075-8

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