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End-of-Life Practices in Rural South India: SocioCultural Determinants

INTRODUCTION: End of life care of terminally ill is a sensitive topic in our socio cultural ethos. In a country where Euthanasia policies are widely debated, dignified death is a desired form of death. Euthanasia literally means “good death”. In India the debate still continues on practices related...

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Autores principales: Ramalingam, Sudha, Ganesan, Subhashini
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6504736/
https://www.ncbi.nlm.nih.gov/pubmed/31114107
http://dx.doi.org/10.4103/IJPC.IJPC_173_18
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author Ramalingam, Sudha
Ganesan, Subhashini
author_facet Ramalingam, Sudha
Ganesan, Subhashini
author_sort Ramalingam, Sudha
collection PubMed
description INTRODUCTION: End of life care of terminally ill is a sensitive topic in our socio cultural ethos. In a country where Euthanasia policies are widely debated, dignified death is a desired form of death. Euthanasia literally means “good death”. In India the debate still continues on practices related to euthanasia and its legalization until recently when the verdict on the passive euthanasia has been passed by the supreme court. In addition, lack of an effective palliative care system has led to complex situations towards the end of life. Globally, it is estimated that palliative care is needed in 40-60% of all deaths. However there is no training or facility to meet this demand. METHODOLOGY: A focus group discussion (FGD) was carried out among 22 residents in a rural area of Tamilnadu to identify the social and cultural determinants of end of life care practices. A FGD guide was prepared and after an informed consent the study was undertaken. An in depth interview was carried out among a sub group of participants. RESULTS: The FGD and the IDI revealed several end of life practices in the rural areas such as Thalaikoothal, Feeding the ill with holy water and sand etc. The study also revealed the major determinants leading to such practices such as the social, and cultural beliefs in addition to economical and emotional factors. CONCLUSION: Several factors determine the end of life decisions in a family ranging from economical to social and cultural factors. While we are examining these factors, it is important to strengthen the palliative care provision in the country by building capacity and integrating it in primary care.
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spelling pubmed-65047362019-05-21 End-of-Life Practices in Rural South India: SocioCultural Determinants Ramalingam, Sudha Ganesan, Subhashini Indian J Palliat Care Original Article INTRODUCTION: End of life care of terminally ill is a sensitive topic in our socio cultural ethos. In a country where Euthanasia policies are widely debated, dignified death is a desired form of death. Euthanasia literally means “good death”. In India the debate still continues on practices related to euthanasia and its legalization until recently when the verdict on the passive euthanasia has been passed by the supreme court. In addition, lack of an effective palliative care system has led to complex situations towards the end of life. Globally, it is estimated that palliative care is needed in 40-60% of all deaths. However there is no training or facility to meet this demand. METHODOLOGY: A focus group discussion (FGD) was carried out among 22 residents in a rural area of Tamilnadu to identify the social and cultural determinants of end of life care practices. A FGD guide was prepared and after an informed consent the study was undertaken. An in depth interview was carried out among a sub group of participants. RESULTS: The FGD and the IDI revealed several end of life practices in the rural areas such as Thalaikoothal, Feeding the ill with holy water and sand etc. The study also revealed the major determinants leading to such practices such as the social, and cultural beliefs in addition to economical and emotional factors. CONCLUSION: Several factors determine the end of life decisions in a family ranging from economical to social and cultural factors. While we are examining these factors, it is important to strengthen the palliative care provision in the country by building capacity and integrating it in primary care. Wolters Kluwer - Medknow 2019 /pmc/articles/PMC6504736/ /pubmed/31114107 http://dx.doi.org/10.4103/IJPC.IJPC_173_18 Text en Copyright: © 2019 Indian Journal of Palliative Care http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Ramalingam, Sudha
Ganesan, Subhashini
End-of-Life Practices in Rural South India: SocioCultural Determinants
title End-of-Life Practices in Rural South India: SocioCultural Determinants
title_full End-of-Life Practices in Rural South India: SocioCultural Determinants
title_fullStr End-of-Life Practices in Rural South India: SocioCultural Determinants
title_full_unstemmed End-of-Life Practices in Rural South India: SocioCultural Determinants
title_short End-of-Life Practices in Rural South India: SocioCultural Determinants
title_sort end-of-life practices in rural south india: sociocultural determinants
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6504736/
https://www.ncbi.nlm.nih.gov/pubmed/31114107
http://dx.doi.org/10.4103/IJPC.IJPC_173_18
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