Engaging patients, clinicians, and the community in a Clinical Data Research Network: Lessons learned from the CAPriCORN CDRN

Engaging patients, clinicians, and community members in the development of a research network creates opportunities and challenges beyond engagement in discrete learning activities. This paper describes our experiences establishing and maintaining a stakeholder engagement infrastructure for the Chic...

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Detalles Bibliográficos
Autores principales: Tambor, Ellen, Shalowitz, Madeleine, Harrington, Joseph M., Hull, Kevin, Watson, Natalie, Sital, Shelly, Al Naber, Jennifer, Miller, Doriane
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Experience Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6508783/
https://www.ncbi.nlm.nih.gov/pubmed/31245603
http://dx.doi.org/10.1002/lrh2.10079

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6508783/
https://www.ncbi.nlm.nih.gov/pubmed/31245603
http://dx.doi.org/10.1002/lrh2.10079

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