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Engaging patients, clinicians, and the community in a Clinical Data Research Network: Lessons learned from the CAPriCORN CDRN
Engaging patients, clinicians, and community members in the development of a research network creates opportunities and challenges beyond engagement in discrete learning activities. This paper describes our experiences establishing and maintaining a stakeholder engagement infrastructure for the Chic...
Autores principales: | Tambor, Ellen, Shalowitz, Madeleine, Harrington, Joseph M., Hull, Kevin, Watson, Natalie, Sital, Shelly, Al Naber, Jennifer, Miller, Doriane |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6508783/ https://www.ncbi.nlm.nih.gov/pubmed/31245603 http://dx.doi.org/10.1002/lrh2.10079 |
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