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Transparency and choice in learning healthcare systems

Learning healthcare systems rely on potentially sensitive data and biospecimens from patients who typically have no knowledge of secondary uses of these resources for research. While this failure to inform patients of these practices is consistent with human subject regulations for research, these p...

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Detalles Bibliográficos
Autor principal: Botkin, Jeffrey R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6508837/
https://www.ncbi.nlm.nih.gov/pubmed/31245576
http://dx.doi.org/10.1002/lrh2.10049