International Comparison of Thalassemia Registries: Challenges and Opportunities

BACKGROUND: Patient registries use standardized methods to systematically gather uniform data for specific groups of patients managed in clinical practice to evaluate specified outcomes. AIM: The objective of this study was to identify and describe structures of the identified thalassemia registries...

Descripción completa

Detalles Bibliográficos
Autores principales: Noori, Tayebeh, Ghazisaeedi, Marjan, Aliabad, Ghasem Miri, Mehdipour, Yousef, Mehraeen, Esmaeil, Conte, Rosa, Safdari, Reza
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Academy of Medical sciences 2019
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6511274/
https://www.ncbi.nlm.nih.gov/pubmed/31213746
http://dx.doi.org/10.5455/aim.2019.27.58-63

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6511274/
https://www.ncbi.nlm.nih.gov/pubmed/31213746
http://dx.doi.org/10.5455/aim.2019.27.58-63

Ejemplares similares