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Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study

Background: Caregivers of children with autism spectrum disorder (ASD) experience increased stress and more significant negative caregiving consequences than those with typically developing children. There is a lack of studies specifically focusing on stress among caregivers with ASD children in Asi...

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Autores principales: Nik Adib, Nik Aida, Ibrahim, Mohd Ismail, Ab Rahman, Azriani, Bakar, Raishan Shafini, Yahaya, Nor Azni, Hussin, Suria, Wan Mansor, Wan Nor Arifin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6517964/
https://www.ncbi.nlm.nih.gov/pubmed/31027225
http://dx.doi.org/10.3390/ijerph16081468
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author Nik Adib, Nik Aida
Ibrahim, Mohd Ismail
Ab Rahman, Azriani
Bakar, Raishan Shafini
Yahaya, Nor Azni
Hussin, Suria
Wan Mansor, Wan Nor Arifin
author_facet Nik Adib, Nik Aida
Ibrahim, Mohd Ismail
Ab Rahman, Azriani
Bakar, Raishan Shafini
Yahaya, Nor Azni
Hussin, Suria
Wan Mansor, Wan Nor Arifin
author_sort Nik Adib, Nik Aida
collection PubMed
description Background: Caregivers of children with autism spectrum disorder (ASD) experience increased stress and more significant negative caregiving consequences than those with typically developing children. There is a lack of studies specifically focusing on stress among caregivers with ASD children in Asian countries. The current study examines levels of perceived stress and factors associated with it among caregivers in Kelantan, Malaysia. Methods: In a cross-sectional study, the Malay version of the Perceived Stress Scale (PSS) was administered to 227 caregivers of children with ASD. The caregivers were recruited from ASD databases in four tertiary hospitals in Kelantan and a meeting was set up during the child’s follow-up in the clinic. Multiple linear regression analyses were applied to determine the predictors of perceived stress. Results: The mean total perceived stress score was 20.84 (4.72). This was considered higher than average. Higher perceived stress was significantly predicted among caregivers who live far from the health institution, caregivers who do not own transportation to bring the child to the treatment center, and caregivers who have an ASD child with a learning disability. Conclusion: Caregivers of an ASD child perceived significant stress while taking care of their children. Institutions should alleviate the factors that were predicted to increase the caregivers’ perceived stress to improve the quality of the lives of children and ASD families as a whole.
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spelling pubmed-65179642019-05-31 Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study Nik Adib, Nik Aida Ibrahim, Mohd Ismail Ab Rahman, Azriani Bakar, Raishan Shafini Yahaya, Nor Azni Hussin, Suria Wan Mansor, Wan Nor Arifin Int J Environ Res Public Health Article Background: Caregivers of children with autism spectrum disorder (ASD) experience increased stress and more significant negative caregiving consequences than those with typically developing children. There is a lack of studies specifically focusing on stress among caregivers with ASD children in Asian countries. The current study examines levels of perceived stress and factors associated with it among caregivers in Kelantan, Malaysia. Methods: In a cross-sectional study, the Malay version of the Perceived Stress Scale (PSS) was administered to 227 caregivers of children with ASD. The caregivers were recruited from ASD databases in four tertiary hospitals in Kelantan and a meeting was set up during the child’s follow-up in the clinic. Multiple linear regression analyses were applied to determine the predictors of perceived stress. Results: The mean total perceived stress score was 20.84 (4.72). This was considered higher than average. Higher perceived stress was significantly predicted among caregivers who live far from the health institution, caregivers who do not own transportation to bring the child to the treatment center, and caregivers who have an ASD child with a learning disability. Conclusion: Caregivers of an ASD child perceived significant stress while taking care of their children. Institutions should alleviate the factors that were predicted to increase the caregivers’ perceived stress to improve the quality of the lives of children and ASD families as a whole. MDPI 2019-04-25 2019-04 /pmc/articles/PMC6517964/ /pubmed/31027225 http://dx.doi.org/10.3390/ijerph16081468 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Nik Adib, Nik Aida
Ibrahim, Mohd Ismail
Ab Rahman, Azriani
Bakar, Raishan Shafini
Yahaya, Nor Azni
Hussin, Suria
Wan Mansor, Wan Nor Arifin
Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study
title Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study
title_full Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study
title_fullStr Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study
title_full_unstemmed Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study
title_short Perceived Stress among Caregivers of Children with Autism Spectrum Disorder: A State-Wide Study
title_sort perceived stress among caregivers of children with autism spectrum disorder: a state-wide study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6517964/
https://www.ncbi.nlm.nih.gov/pubmed/31027225
http://dx.doi.org/10.3390/ijerph16081468
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