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Factors influencing NCGENES research participants’ requests for non-medically actionable secondary findings
PURPOSE: Genomic sequencing can reveal variants with limited to no medical actionability. Previous research has assessed individuals’ intentions to learn this information, but few report the decisions they made and why. METHODS: The NCGENES (North Carolina Clinical Genomic Evaluation by Next Generat...
Autores principales: | Roche, Myra I., Griesemer, Ida, Khan, Cynthia M., Moore, Elizabeth, Lin, Feng-Chang, O’Daniel, Julianne M., Foreman, Ann Katherine M., Lee, Kristy, Powell, Bradford C., Berg, Jonathan S., Evans, James P., Henderson, Gail E., Rini, Christine |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6522134/ https://www.ncbi.nlm.nih.gov/pubmed/30237575 http://dx.doi.org/10.1038/s41436-018-0294-z |
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