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Factors influencing NCGENES research participants’ requests for non-medically actionable secondary findings

PURPOSE: Genomic sequencing can reveal variants with limited to no medical actionability. Previous research has assessed individuals’ intentions to learn this information, but few report the decisions they made and why. METHODS: The NCGENES (North Carolina Clinical Genomic Evaluation by Next Generat...

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Detalles Bibliográficos
Autores principales: Roche, Myra I., Griesemer, Ida, Khan, Cynthia M., Moore, Elizabeth, Lin, Feng-Chang, O’Daniel, Julianne M., Foreman, Ann Katherine M., Lee, Kristy, Powell, Bradford C., Berg, Jonathan S., Evans, James P., Henderson, Gail E., Rini, Christine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6522134/
https://www.ncbi.nlm.nih.gov/pubmed/30237575
http://dx.doi.org/10.1038/s41436-018-0294-z

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