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Development and validation of the caregiver roles and responsibilities scale in cancer caregivers

PURPOSE: The caregiver roles and responsibilities scale (CRRS) was developed to facilitate formal assessment of broad life impacts for informal (i.e. unpaid) caregivers to people with cancer. Here we report the development and initial validation. METHODS: The CRRS was developed from the thematic ana...

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Autores principales: Shilling, Valerie, Starkings, Rachel, Jenkins, Valerie, Cella, David, Fallowfield, Lesley
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6522459/
https://www.ncbi.nlm.nih.gov/pubmed/30887387
http://dx.doi.org/10.1007/s11136-019-02154-4
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author Shilling, Valerie
Starkings, Rachel
Jenkins, Valerie
Cella, David
Fallowfield, Lesley
author_facet Shilling, Valerie
Starkings, Rachel
Jenkins, Valerie
Cella, David
Fallowfield, Lesley
author_sort Shilling, Valerie
collection PubMed
description PURPOSE: The caregiver roles and responsibilities scale (CRRS) was developed to facilitate formal assessment of broad life impacts for informal (i.e. unpaid) caregivers to people with cancer. Here we report the development and initial validation. METHODS: The CRRS was developed from the thematic analysis of two interview studies with cancer patients (stage III-IV breast, gynaecological, lung or melanoma) and caregivers. In the evaluation studies, participants completed the CRRS alongside the Caregiver Quality of Life—Cancer, the main criterion measure for concurrent validity, and the WHOQOL-BREF for additional convergent validity data. Questionnaires were completed at baseline, 7-days and 2-months. Demographic data and patient characteristics were collected at baseline. RESULTS: Two-hundred and forty-five caregivers to people with stage I-IV breast, colorectal, gynaecological, head and neck, lung or renal cancer or melanoma completed the CRRS at least once. The final 41 core items selected comprised five subscales: Support and Impact, Lifestyle, Emotional Health and Wellbeing, Self-care and Financial Wellbeing as well as three standalone items. Missing data rate was low (0.6%); there were no ceiling or floor effects for total scores. Cronbach’s alpha was 0.92 for the CRRS-41; 0.75–0.87 for the subscales. CRRS showed good test–retest reliability (ICC = 0.91), sensitivity to change and the predicted pattern of correlation with validation measures r = 0.75–0.89. The standalone 7-item jobs and careers subscale requires further validation. CONCLUSIONS: Initial evaluation shows the CRRS has good validity and reliability and is a promising tool for the assessment of the effects of cancer and cancer treatment on the lives and wellbeing of informal caregivers. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s11136-019-02154-4) contains supplementary material, which is available to authorized users.
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spelling pubmed-65224592019-06-05 Development and validation of the caregiver roles and responsibilities scale in cancer caregivers Shilling, Valerie Starkings, Rachel Jenkins, Valerie Cella, David Fallowfield, Lesley Qual Life Res Article PURPOSE: The caregiver roles and responsibilities scale (CRRS) was developed to facilitate formal assessment of broad life impacts for informal (i.e. unpaid) caregivers to people with cancer. Here we report the development and initial validation. METHODS: The CRRS was developed from the thematic analysis of two interview studies with cancer patients (stage III-IV breast, gynaecological, lung or melanoma) and caregivers. In the evaluation studies, participants completed the CRRS alongside the Caregiver Quality of Life—Cancer, the main criterion measure for concurrent validity, and the WHOQOL-BREF for additional convergent validity data. Questionnaires were completed at baseline, 7-days and 2-months. Demographic data and patient characteristics were collected at baseline. RESULTS: Two-hundred and forty-five caregivers to people with stage I-IV breast, colorectal, gynaecological, head and neck, lung or renal cancer or melanoma completed the CRRS at least once. The final 41 core items selected comprised five subscales: Support and Impact, Lifestyle, Emotional Health and Wellbeing, Self-care and Financial Wellbeing as well as three standalone items. Missing data rate was low (0.6%); there were no ceiling or floor effects for total scores. Cronbach’s alpha was 0.92 for the CRRS-41; 0.75–0.87 for the subscales. CRRS showed good test–retest reliability (ICC = 0.91), sensitivity to change and the predicted pattern of correlation with validation measures r = 0.75–0.89. The standalone 7-item jobs and careers subscale requires further validation. CONCLUSIONS: Initial evaluation shows the CRRS has good validity and reliability and is a promising tool for the assessment of the effects of cancer and cancer treatment on the lives and wellbeing of informal caregivers. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s11136-019-02154-4) contains supplementary material, which is available to authorized users. Springer International Publishing 2019-03-18 2019 /pmc/articles/PMC6522459/ /pubmed/30887387 http://dx.doi.org/10.1007/s11136-019-02154-4 Text en © The Author(s) 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Article
Shilling, Valerie
Starkings, Rachel
Jenkins, Valerie
Cella, David
Fallowfield, Lesley
Development and validation of the caregiver roles and responsibilities scale in cancer caregivers
title Development and validation of the caregiver roles and responsibilities scale in cancer caregivers
title_full Development and validation of the caregiver roles and responsibilities scale in cancer caregivers
title_fullStr Development and validation of the caregiver roles and responsibilities scale in cancer caregivers
title_full_unstemmed Development and validation of the caregiver roles and responsibilities scale in cancer caregivers
title_short Development and validation of the caregiver roles and responsibilities scale in cancer caregivers
title_sort development and validation of the caregiver roles and responsibilities scale in cancer caregivers
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6522459/
https://www.ncbi.nlm.nih.gov/pubmed/30887387
http://dx.doi.org/10.1007/s11136-019-02154-4
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