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Sociodemographic, Clinical, and Psychosocial Characteristics of People with Hemophilia in Portugal: Findings from the First National Survey

Hemophilia is a rare genetic bleeding disorder associated with pain, impaired functionality, and decreased quality of life (QoL). Several studies have focused on patient-reported outcomes of people with hemophilia (PWH) worldwide, but no such data are available for Portugal. This survey aimed to des...

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Detalles Bibliográficos
Autores principales:	Pinto, Patrícia Ribeiro, Paredes, Ana Cristina, Pedras, Susana, Costa, Patrício, Crato, Miguel, Fernandes, Susana, Lopes, Manuela, Carvalho, Manuela, Almeida, Armando
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Georg Thieme Verlag KG 2018
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6524863/ https://www.ncbi.nlm.nih.gov/pubmed/31249930 http://dx.doi.org/10.1055/s-0038-1624568

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