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Long-term unmet needs after stroke: systematic review of evidence from survey studies

OBJECTIVES: To synthesise evidence on longer term unmet needs perceived by stroke survivors, and psychometric properties of the tools used to evaluate unmet care needs after stroke. DESIGN: Systematic review. SETTING: Community or patients’ home. PARTICIPANTS: Stroke survivors. METHODS: We searched...

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Autores principales: Chen, Ting, Zhang, Bo, Deng, Yan, Fan, Jing-Chun, Zhang, Liansheng, Song, Fujian
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6530326/
https://www.ncbi.nlm.nih.gov/pubmed/31110106
http://dx.doi.org/10.1136/bmjopen-2018-028137
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author Chen, Ting
Zhang, Bo
Deng, Yan
Fan, Jing-Chun
Zhang, Liansheng
Song, Fujian
author_facet Chen, Ting
Zhang, Bo
Deng, Yan
Fan, Jing-Chun
Zhang, Liansheng
Song, Fujian
author_sort Chen, Ting
collection PubMed
description OBJECTIVES: To synthesise evidence on longer term unmet needs perceived by stroke survivors, and psychometric properties of the tools used to evaluate unmet care needs after stroke. DESIGN: Systematic review. SETTING: Community or patients’ home. PARTICIPANTS: Stroke survivors. METHODS: We searched PubMed, PsycINFO, CINAHL, EMBASE from inception to 31 March 2018 to identify survey studies that evaluated unmet needs perceived by stroke survivors after hospital discharge. Reported unmet needs were categorised under three domains: body functioning, activity/participation and environmental factors. Ranges of prevalence rates of unmet needs reported in studies were presented. RESULTS: We included 19 eligible studies, with considerable heterogeneity in patients, survey methods and results. Psychometric properties of two stroke-specific tools were formally evaluated, indicating their moderate reliability and content/concurrent validity. The median number of reported unmet needs per stroke survivor was from two to five, and the proportion of stroke survivors with at least one unmet needs was on average 73.8% (range 19.8%– 91.7%). Unmet needs perceived by stroke survivors included 55 records of unmet body functioning needs, 47 records of unmet activities/participatory needs and 101 records of unmet environmental needs. Common unmet service needs were unmet information needs (3.1%– 65.0%), transport (5.4%–53.0%), home help/personal care (4.7%–39.3%) and therapy (2.0%–35.7%). CONCLUSIONS: The prevalence of unmet long-term needs is high among stroke survivors, and there is considerable heterogeneity in type and frequency of specific unmet needs. More research is required to link regular assessment of long-term unmet needs of stroke survivors with the provision of cost-effective patient-centred health and social care services.
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spelling pubmed-65303262019-06-07 Long-term unmet needs after stroke: systematic review of evidence from survey studies Chen, Ting Zhang, Bo Deng, Yan Fan, Jing-Chun Zhang, Liansheng Song, Fujian BMJ Open Rehabilitation Medicine OBJECTIVES: To synthesise evidence on longer term unmet needs perceived by stroke survivors, and psychometric properties of the tools used to evaluate unmet care needs after stroke. DESIGN: Systematic review. SETTING: Community or patients’ home. PARTICIPANTS: Stroke survivors. METHODS: We searched PubMed, PsycINFO, CINAHL, EMBASE from inception to 31 March 2018 to identify survey studies that evaluated unmet needs perceived by stroke survivors after hospital discharge. Reported unmet needs were categorised under three domains: body functioning, activity/participation and environmental factors. Ranges of prevalence rates of unmet needs reported in studies were presented. RESULTS: We included 19 eligible studies, with considerable heterogeneity in patients, survey methods and results. Psychometric properties of two stroke-specific tools were formally evaluated, indicating their moderate reliability and content/concurrent validity. The median number of reported unmet needs per stroke survivor was from two to five, and the proportion of stroke survivors with at least one unmet needs was on average 73.8% (range 19.8%– 91.7%). Unmet needs perceived by stroke survivors included 55 records of unmet body functioning needs, 47 records of unmet activities/participatory needs and 101 records of unmet environmental needs. Common unmet service needs were unmet information needs (3.1%– 65.0%), transport (5.4%–53.0%), home help/personal care (4.7%–39.3%) and therapy (2.0%–35.7%). CONCLUSIONS: The prevalence of unmet long-term needs is high among stroke survivors, and there is considerable heterogeneity in type and frequency of specific unmet needs. More research is required to link regular assessment of long-term unmet needs of stroke survivors with the provision of cost-effective patient-centred health and social care services. BMJ Publishing Group 2019-05-19 /pmc/articles/PMC6530326/ /pubmed/31110106 http://dx.doi.org/10.1136/bmjopen-2018-028137 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Rehabilitation Medicine
Chen, Ting
Zhang, Bo
Deng, Yan
Fan, Jing-Chun
Zhang, Liansheng
Song, Fujian
Long-term unmet needs after stroke: systematic review of evidence from survey studies
title Long-term unmet needs after stroke: systematic review of evidence from survey studies
title_full Long-term unmet needs after stroke: systematic review of evidence from survey studies
title_fullStr Long-term unmet needs after stroke: systematic review of evidence from survey studies
title_full_unstemmed Long-term unmet needs after stroke: systematic review of evidence from survey studies
title_short Long-term unmet needs after stroke: systematic review of evidence from survey studies
title_sort long-term unmet needs after stroke: systematic review of evidence from survey studies
topic Rehabilitation Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6530326/
https://www.ncbi.nlm.nih.gov/pubmed/31110106
http://dx.doi.org/10.1136/bmjopen-2018-028137
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