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Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration

BACKGROUND: Codesign has the potential to transform health and other public services. To avoid unintentionally reinforcing existing inequities, better understanding is needed of how to facilitate involvement of vulnerable populations in acceptable, ethical and effective codesign. OBJECTIVE: To explo...

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Autores principales: Mulvale, Gillian, Moll, Sandra, Miatello, Ashleigh, Robert, Glenn, Larkin, Michael, Palmer, Victoria J., Powell, Alicia, Gable, Chelsea, Girling, Melissa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6543156/
https://www.ncbi.nlm.nih.gov/pubmed/30604580
http://dx.doi.org/10.1111/hex.12864
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author Mulvale, Gillian
Moll, Sandra
Miatello, Ashleigh
Robert, Glenn
Larkin, Michael
Palmer, Victoria J.
Powell, Alicia
Gable, Chelsea
Girling, Melissa
author_facet Mulvale, Gillian
Moll, Sandra
Miatello, Ashleigh
Robert, Glenn
Larkin, Michael
Palmer, Victoria J.
Powell, Alicia
Gable, Chelsea
Girling, Melissa
author_sort Mulvale, Gillian
collection PubMed
description BACKGROUND: Codesign has the potential to transform health and other public services. To avoid unintentionally reinforcing existing inequities, better understanding is needed of how to facilitate involvement of vulnerable populations in acceptable, ethical and effective codesign. OBJECTIVE: To explore citizens’ involvement in codesigning public services for vulnerable groups, identify challenges and suggest improvements. DESIGN: A modified case study approach. Pattern matching was used to compare reported challenges with a priori theoretical propositions. SETTING AND PARTICIPANTS: A two‐day international symposium involved 28 practitioners, academics and service users from seven countries to reflect on challenges and to codesign improved processes for involving vulnerable populations. INTERVENTION STUDIED: Eight case studies working with vulnerable and disadvantaged populations in three countries. RESULTS: We identified five shared challenges to meaningful, sustained participation of vulnerable populations: engagement; power differentials; health concerns; funding; and other economic/social circumstances. In response, a focus on relationships and flexibility is essential. We encourage codesign projects to enact a set of principles or heuristics rather than following pre‐specified steps. We identify a set of principles and tactics, relating to challenges outlined in our case studies, which may help in codesigning public services with vulnerable populations. DISCUSSION AND CONCLUSIONS: Codesign facilitators must consider how meaningful engagement will be achieved and how power differentials will be managed when working with services for vulnerable populations. The need for flexibility and responsiveness to service user needs may challenge expectations about timelines and outcomes. User‐centred evaluations of codesigned public services are needed.
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spelling pubmed-65431562019-06-04 Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration Mulvale, Gillian Moll, Sandra Miatello, Ashleigh Robert, Glenn Larkin, Michael Palmer, Victoria J. Powell, Alicia Gable, Chelsea Girling, Melissa Health Expect Review Articles BACKGROUND: Codesign has the potential to transform health and other public services. To avoid unintentionally reinforcing existing inequities, better understanding is needed of how to facilitate involvement of vulnerable populations in acceptable, ethical and effective codesign. OBJECTIVE: To explore citizens’ involvement in codesigning public services for vulnerable groups, identify challenges and suggest improvements. DESIGN: A modified case study approach. Pattern matching was used to compare reported challenges with a priori theoretical propositions. SETTING AND PARTICIPANTS: A two‐day international symposium involved 28 practitioners, academics and service users from seven countries to reflect on challenges and to codesign improved processes for involving vulnerable populations. INTERVENTION STUDIED: Eight case studies working with vulnerable and disadvantaged populations in three countries. RESULTS: We identified five shared challenges to meaningful, sustained participation of vulnerable populations: engagement; power differentials; health concerns; funding; and other economic/social circumstances. In response, a focus on relationships and flexibility is essential. We encourage codesign projects to enact a set of principles or heuristics rather than following pre‐specified steps. We identify a set of principles and tactics, relating to challenges outlined in our case studies, which may help in codesigning public services with vulnerable populations. DISCUSSION AND CONCLUSIONS: Codesign facilitators must consider how meaningful engagement will be achieved and how power differentials will be managed when working with services for vulnerable populations. The need for flexibility and responsiveness to service user needs may challenge expectations about timelines and outcomes. User‐centred evaluations of codesigned public services are needed. John Wiley and Sons Inc. 2019-01-02 2019-06 /pmc/articles/PMC6543156/ /pubmed/30604580 http://dx.doi.org/10.1111/hex.12864 Text en © 2019 The Authors. Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Articles
Mulvale, Gillian
Moll, Sandra
Miatello, Ashleigh
Robert, Glenn
Larkin, Michael
Palmer, Victoria J.
Powell, Alicia
Gable, Chelsea
Girling, Melissa
Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration
title Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration
title_full Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration
title_fullStr Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration
title_full_unstemmed Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration
title_short Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration
title_sort codesigning health and other public services with vulnerable and disadvantaged populations: insights from an international collaboration
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6543156/
https://www.ncbi.nlm.nih.gov/pubmed/30604580
http://dx.doi.org/10.1111/hex.12864
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