‘I haven’t met them, I don’t have any trust in them. It just feels like a big unknown’: a qualitative study exploring the determinants of consent to use Human Fertilisation and Embryology Authority registry data in research

OBJECTIVES: To explore why and how fertility patients decide to allow (or deny) the use of personal data held in the Human Fertilisation and Embryology Authority registry for linkage and research. DESIGN: A qualitative study was conducted using in-depth face-to-face interviews and an online survey t...

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Detalles Bibliográficos
Autores principales: Carson, Claire, Hinton, Lisa, Kurinczuk, Jenny, Quigley, Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Qualitative Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6549633/
https://www.ncbi.nlm.nih.gov/pubmed/31152033
http://dx.doi.org/10.1136/bmjopen-2018-026469

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6549633/
https://www.ncbi.nlm.nih.gov/pubmed/31152033
http://dx.doi.org/10.1136/bmjopen-2018-026469

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