Cargando…
Secondary research uses of residual newborn screening dried bloodspots: a scoping review
PURPOSE: Residual newborn screening dried bloodspots (DBS) are a valuable resource for research but the extent, type, and nature of uses are unknown. The objective of this research was to systematically review the published literature about secondary research uses of residual DBS using a scoping rev...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group US
2018
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6557682/ https://www.ncbi.nlm.nih.gov/pubmed/30531811 http://dx.doi.org/10.1038/s41436-018-0387-8 |
_version_ | 1783425477650677760 |
---|---|
author | Rothwell, Erin Johnson, Erin Riches, Naomi Botkin, Jeffrey R. |
author_facet | Rothwell, Erin Johnson, Erin Riches, Naomi Botkin, Jeffrey R. |
author_sort | Rothwell, Erin |
collection | PubMed |
description | PURPOSE: Residual newborn screening dried bloodspots (DBS) are a valuable resource for research but the extent, type, and nature of uses are unknown. The objective of this research was to systematically review the published literature about secondary research uses of residual DBS using a scoping review protocol. METHODS: A total of 654 publications meeting the inclusion criteria with a 94% interrater reliability were identified. A coding template was created with input from expert advisory board to summarize the data. Electronic literature search of Ovid MEDLINE, Embase (via Embase.com), CINAHL (EBSCO),and Science and Social Sciences Citation Indices (via Web of Science) was conducted. RESULTS: A large proportion of the secondary research with DBS was conducted within the United States (30%). The number of published studies utilizing DBS are increasing each year, primarily with observational or case–control designs. Only a small number of studies reported whether or not consent was obtained and if the DBS were identifiable or not. CONCLUSION: Outcomes of this research indicate that residual DBS are well utilized worldwide for research addressing individual and public health issues. Future analyses will summarize outcomes of disease-specific research and provide evidence of the use of residual DBS in research on health outcomes. |
format | Online Article Text |
id | pubmed-6557682 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Nature Publishing Group US |
record_format | MEDLINE/PubMed |
spelling | pubmed-65576822019-07-05 Secondary research uses of residual newborn screening dried bloodspots: a scoping review Rothwell, Erin Johnson, Erin Riches, Naomi Botkin, Jeffrey R. Genet Med Article PURPOSE: Residual newborn screening dried bloodspots (DBS) are a valuable resource for research but the extent, type, and nature of uses are unknown. The objective of this research was to systematically review the published literature about secondary research uses of residual DBS using a scoping review protocol. METHODS: A total of 654 publications meeting the inclusion criteria with a 94% interrater reliability were identified. A coding template was created with input from expert advisory board to summarize the data. Electronic literature search of Ovid MEDLINE, Embase (via Embase.com), CINAHL (EBSCO),and Science and Social Sciences Citation Indices (via Web of Science) was conducted. RESULTS: A large proportion of the secondary research with DBS was conducted within the United States (30%). The number of published studies utilizing DBS are increasing each year, primarily with observational or case–control designs. Only a small number of studies reported whether or not consent was obtained and if the DBS were identifiable or not. CONCLUSION: Outcomes of this research indicate that residual DBS are well utilized worldwide for research addressing individual and public health issues. Future analyses will summarize outcomes of disease-specific research and provide evidence of the use of residual DBS in research on health outcomes. Nature Publishing Group US 2018-12-10 2019 /pmc/articles/PMC6557682/ /pubmed/30531811 http://dx.doi.org/10.1038/s41436-018-0387-8 Text en © The Author(s) 2018 Open Access This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, and provide a link to the Creative Commons license. You do not have permission under this license to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-nd/4.0/. |
spellingShingle | Article Rothwell, Erin Johnson, Erin Riches, Naomi Botkin, Jeffrey R. Secondary research uses of residual newborn screening dried bloodspots: a scoping review |
title | Secondary research uses of residual newborn screening dried bloodspots: a scoping review |
title_full | Secondary research uses of residual newborn screening dried bloodspots: a scoping review |
title_fullStr | Secondary research uses of residual newborn screening dried bloodspots: a scoping review |
title_full_unstemmed | Secondary research uses of residual newborn screening dried bloodspots: a scoping review |
title_short | Secondary research uses of residual newborn screening dried bloodspots: a scoping review |
title_sort | secondary research uses of residual newborn screening dried bloodspots: a scoping review |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6557682/ https://www.ncbi.nlm.nih.gov/pubmed/30531811 http://dx.doi.org/10.1038/s41436-018-0387-8 |
work_keys_str_mv | AT rothwellerin secondaryresearchusesofresidualnewbornscreeningdriedbloodspotsascopingreview AT johnsonerin secondaryresearchusesofresidualnewbornscreeningdriedbloodspotsascopingreview AT richesnaomi secondaryresearchusesofresidualnewbornscreeningdriedbloodspotsascopingreview AT botkinjeffreyr secondaryresearchusesofresidualnewbornscreeningdriedbloodspotsascopingreview |