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The Maudsley Biomedical Research Centre (BRC) data linkage service user and carer advisory group: creating and sustaining a successful patient and public involvement group to guide research in a complex area
BACKGROUND: Patient and Public Involvement (PPI) in health and social care research has been shown to improve the quality and relevance of research. PPI in data linkage research is important in ensuring the legitimacy of future health informatics initiatives, but remains sparse and under-developed....
Autores principales: | Jewell, Amelia, Pritchard, Megan, Barrett, Katherine, Green, Patrick, Markham, Sarah, McKenzie, Sharon, Oliver, Roger, Wan, Maria, Downs, Johnny, Stewart, Robert |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6558776/ https://www.ncbi.nlm.nih.gov/pubmed/31205751 http://dx.doi.org/10.1186/s40900-019-0152-4 |
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