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Need for a universal thalassemia screening programme in India? A public health perspective

Thalassemia is one of the significant public health concerns as the carrier rate and disease numbers are increasing worldwide. The increase in number is because of consanguineous marriage which has a deep-rooted norm among many people globally. Besides various clinical and psychological problems ass...

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Autores principales: Thiyagarajan, Arulmani, Bhattacharya, Sudip, Sharma, Neha, Srivastava, Abhay, Dhar, Dipak Kumar
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6559078/
https://www.ncbi.nlm.nih.gov/pubmed/31198708
http://dx.doi.org/10.4103/jfmpc.jfmpc_90_19
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author Thiyagarajan, Arulmani
Bhattacharya, Sudip
Sharma, Neha
Srivastava, Abhay
Dhar, Dipak Kumar
author_facet Thiyagarajan, Arulmani
Bhattacharya, Sudip
Sharma, Neha
Srivastava, Abhay
Dhar, Dipak Kumar
author_sort Thiyagarajan, Arulmani
collection PubMed
description Thalassemia is one of the significant public health concerns as the carrier rate and disease numbers are increasing worldwide. The increase in number is because of consanguineous marriage which has a deep-rooted norm among many people globally. Besides various clinical and psychological problems associated with thalassemia, a lifelong treatment aspect makes it much more difficult for a person or family to sustain with thalassemia or thalassemia-affected children. Though the government has come up with a screening programme for thalassemia, given the fact that it is optional, people tend to ignore it. Examples from Pakistan and Iran remind us to have a mandatory prenatal screening programme which is very much cost-effective. With a highly recommended notion, we suggest that it should be universal to have an antenatal screening programme to avert thalassemia-related deaths.
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spelling pubmed-65590782019-06-13 Need for a universal thalassemia screening programme in India? A public health perspective Thiyagarajan, Arulmani Bhattacharya, Sudip Sharma, Neha Srivastava, Abhay Dhar, Dipak Kumar J Family Med Prim Care Commentary Thalassemia is one of the significant public health concerns as the carrier rate and disease numbers are increasing worldwide. The increase in number is because of consanguineous marriage which has a deep-rooted norm among many people globally. Besides various clinical and psychological problems associated with thalassemia, a lifelong treatment aspect makes it much more difficult for a person or family to sustain with thalassemia or thalassemia-affected children. Though the government has come up with a screening programme for thalassemia, given the fact that it is optional, people tend to ignore it. Examples from Pakistan and Iran remind us to have a mandatory prenatal screening programme which is very much cost-effective. With a highly recommended notion, we suggest that it should be universal to have an antenatal screening programme to avert thalassemia-related deaths. Wolters Kluwer - Medknow 2019-05 /pmc/articles/PMC6559078/ /pubmed/31198708 http://dx.doi.org/10.4103/jfmpc.jfmpc_90_19 Text en Copyright: © 2019 Journal of Family Medicine and Primary Care http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Commentary
Thiyagarajan, Arulmani
Bhattacharya, Sudip
Sharma, Neha
Srivastava, Abhay
Dhar, Dipak Kumar
Need for a universal thalassemia screening programme in India? A public health perspective
title Need for a universal thalassemia screening programme in India? A public health perspective
title_full Need for a universal thalassemia screening programme in India? A public health perspective
title_fullStr Need for a universal thalassemia screening programme in India? A public health perspective
title_full_unstemmed Need for a universal thalassemia screening programme in India? A public health perspective
title_short Need for a universal thalassemia screening programme in India? A public health perspective
title_sort need for a universal thalassemia screening programme in india? a public health perspective
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6559078/
https://www.ncbi.nlm.nih.gov/pubmed/31198708
http://dx.doi.org/10.4103/jfmpc.jfmpc_90_19
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