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User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study
BACKGROUND: Partners are often the main caregivers in the care for patients with amyotrophic lateral sclerosis (ALS) and progressive muscular atrophy (PMA). Providing care during the progressive and fatal disease course of these patients is challenging and many caregivers experience feelings of dist...
Autores principales: | de Wit, Jessica, Vervoort, Sigrid C. J. M., van Eerden, Eefke, van den Berg, Leonard H., Visser-Meily, Johanna M. A., Beelen, Anita, Schröder, Carin D. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6570885/ https://www.ncbi.nlm.nih.gov/pubmed/31202270 http://dx.doi.org/10.1186/s40359-019-0308-x |
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