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Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care

Background: Caregivers are the initial gatekeepers in the health care management of children with autism spectrum disorder (ASD). Methods: This cross-sectional study aimed to determine the factors associated with caregivers’ satisfaction with different levels of health care services in managing chil...

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Autores principales: Nik Adib, Nik Aida, Ibrahim, Mohd Ismail, Ab Rahman, Azriani, Bakar, Raishan Shafini, Yahaya, Nor Azni, Hussin, Suria, Wan Mansor, Wan Nor Arifin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6572543/
https://www.ncbi.nlm.nih.gov/pubmed/31091735
http://dx.doi.org/10.3390/ijerph16101684
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author Nik Adib, Nik Aida
Ibrahim, Mohd Ismail
Ab Rahman, Azriani
Bakar, Raishan Shafini
Yahaya, Nor Azni
Hussin, Suria
Wan Mansor, Wan Nor Arifin
author_facet Nik Adib, Nik Aida
Ibrahim, Mohd Ismail
Ab Rahman, Azriani
Bakar, Raishan Shafini
Yahaya, Nor Azni
Hussin, Suria
Wan Mansor, Wan Nor Arifin
author_sort Nik Adib, Nik Aida
collection PubMed
description Background: Caregivers are the initial gatekeepers in the health care management of children with autism spectrum disorder (ASD). Methods: This cross-sectional study aimed to determine the factors associated with caregivers’ satisfaction with different levels of health care services in managing children with ASD in Kelantan. The satisfaction scores of 227 main caregivers of confirmed ASD children were assessed with a modified Parent Satisfaction Scale (PSS) questionnaire. Results: The analysis showed that caregivers who waited longer for a doctor’s consultation in primary care had a reduced PSS score, whereas caregivers who were satisfied with the waiting time in primary care had higher PSS scores. At the secondary care level, caregivers who possessed at least a diploma had reduced PSS scores, whereas caregivers who were satisfied with both doctors’ consultation times and occupational therapy appointments had higher PSS scores. At the tertiary care level, caregivers with an underlying medical problem and who had children undergoing occupational therapy for two months or more had reduced PSS scores. Nevertheless, the analysis showed that caregivers who were concerned with their children’s sleeping problems, who had been informed about parental support, who were satisfied with speech and occupational therapy appointments, who were satisfied with waiting times at tertiary care clinics, and who were satisfied with their doctor’s knowledge and experience had higher PSS scores. Conclusions: This study elucidated the importance of understanding caregivers’ satisfaction in attaining care for their ASD children and highlighted the need to promote factors that would increase caregivers’ satisfaction with current ASD services.
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spelling pubmed-65725432019-06-18 Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care Nik Adib, Nik Aida Ibrahim, Mohd Ismail Ab Rahman, Azriani Bakar, Raishan Shafini Yahaya, Nor Azni Hussin, Suria Wan Mansor, Wan Nor Arifin Int J Environ Res Public Health Article Background: Caregivers are the initial gatekeepers in the health care management of children with autism spectrum disorder (ASD). Methods: This cross-sectional study aimed to determine the factors associated with caregivers’ satisfaction with different levels of health care services in managing children with ASD in Kelantan. The satisfaction scores of 227 main caregivers of confirmed ASD children were assessed with a modified Parent Satisfaction Scale (PSS) questionnaire. Results: The analysis showed that caregivers who waited longer for a doctor’s consultation in primary care had a reduced PSS score, whereas caregivers who were satisfied with the waiting time in primary care had higher PSS scores. At the secondary care level, caregivers who possessed at least a diploma had reduced PSS scores, whereas caregivers who were satisfied with both doctors’ consultation times and occupational therapy appointments had higher PSS scores. At the tertiary care level, caregivers with an underlying medical problem and who had children undergoing occupational therapy for two months or more had reduced PSS scores. Nevertheless, the analysis showed that caregivers who were concerned with their children’s sleeping problems, who had been informed about parental support, who were satisfied with speech and occupational therapy appointments, who were satisfied with waiting times at tertiary care clinics, and who were satisfied with their doctor’s knowledge and experience had higher PSS scores. Conclusions: This study elucidated the importance of understanding caregivers’ satisfaction in attaining care for their ASD children and highlighted the need to promote factors that would increase caregivers’ satisfaction with current ASD services. MDPI 2019-05-14 2019-05 /pmc/articles/PMC6572543/ /pubmed/31091735 http://dx.doi.org/10.3390/ijerph16101684 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Nik Adib, Nik Aida
Ibrahim, Mohd Ismail
Ab Rahman, Azriani
Bakar, Raishan Shafini
Yahaya, Nor Azni
Hussin, Suria
Wan Mansor, Wan Nor Arifin
Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care
title Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care
title_full Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care
title_fullStr Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care
title_full_unstemmed Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care
title_short Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care
title_sort predictors of caregivers’ satisfaction with the management of children with autism spectrum disorder: a study at multiple levels of health care
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6572543/
https://www.ncbi.nlm.nih.gov/pubmed/31091735
http://dx.doi.org/10.3390/ijerph16101684
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