In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’

We welcome Ballantyne & Schaefer’s discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.

Detalles Bibliográficos
Autores principales: Hepgul, Nilay, Sleeman, Katherine E, Firth, Alice M, Johnston, Anna, Teo, James T H, Bernal, William, Dobson, Richard J B, Higginson, Irene J
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Response
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6583136/
https://www.ncbi.nlm.nih.gov/pubmed/30617201
http://dx.doi.org/10.1136/medethics-2018-105271
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author Hepgul, Nilay
Sleeman, Katherine E
Firth, Alice M
Johnston, Anna
Teo, James T H
Bernal, William
Dobson, Richard J B
Higginson, Irene J
author_facet Hepgul, Nilay
Sleeman, Katherine E
Firth, Alice M
Johnston, Anna
Teo, James T H
Bernal, William
Dobson, Richard J B
Higginson, Irene J
author_sort Hepgul, Nilay
collection PubMed
description We welcome Ballantyne & Schaefer’s discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.
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spelling pubmed-65831362019-07-05 In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’ Hepgul, Nilay Sleeman, Katherine E Firth, Alice M Johnston, Anna Teo, James T H Bernal, William Dobson, Richard J B Higginson, Irene J J Med Ethics Response We welcome Ballantyne & Schaefer’s discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic. BMJ Publishing Group 2019-05 2019-01-07 /pmc/articles/PMC6583136/ /pubmed/30617201 http://dx.doi.org/10.1136/medethics-2018-105271 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Response
Hepgul, Nilay
Sleeman, Katherine E
Firth, Alice M
Johnston, Anna
Teo, James T H
Bernal, William
Dobson, Richard J B
Higginson, Irene J
In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
title In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
title_full In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
title_fullStr In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
title_full_unstemmed In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
title_short In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
title_sort in response to ballantyne and schaefer’s ‘consent and the ethical duty to participate in health data research’
topic Response
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6583136/
https://www.ncbi.nlm.nih.gov/pubmed/30617201
http://dx.doi.org/10.1136/medethics-2018-105271
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