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Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey

BACKGROUND: Currently, WeChat is widely used in disease education for patients with Crohn’s disease (CD) in China. It is beneficial for the patients to actively engage in their disease management. METHODS: In this study, we examined the source and expectations of disease information for Chinese CD p...

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Detalles Bibliográficos
Autores principales: Yu, Qiao, Xu, Liyi, Li, Lili, Zhi, Min, Gu, Yubei, Wang, Xinying, Guo, Hong, Li, Yue, Fan, Yihong, Yang, Bolin, Xue, Meng, Lv, Minfang, Xu, Dingting, Zhang, Hanyun, Li, Yan, Song, Yongmao, Deng, Qun, Huang, Xiaoxu, Zhong, Jing, Hu, Wen, Zhu, Yimiao, Wang, Xiaoying, Cai, Jianting, Chen, Yan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6584988/
https://www.ncbi.nlm.nih.gov/pubmed/31221086
http://dx.doi.org/10.1186/s12876-019-1011-3
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author Yu, Qiao
Xu, Liyi
Li, Lili
Zhi, Min
Gu, Yubei
Wang, Xinying
Guo, Hong
Li, Yue
Fan, Yihong
Yang, Bolin
Xue, Meng
Lv, Minfang
Xu, Dingting
Zhang, Hanyun
Li, Yan
Song, Yongmao
Deng, Qun
Huang, Xiaoxu
Zhong, Jing
Hu, Wen
Zhu, Yimiao
Wang, Xiaoying
Cai, Jianting
Chen, Yan
author_facet Yu, Qiao
Xu, Liyi
Li, Lili
Zhi, Min
Gu, Yubei
Wang, Xinying
Guo, Hong
Li, Yue
Fan, Yihong
Yang, Bolin
Xue, Meng
Lv, Minfang
Xu, Dingting
Zhang, Hanyun
Li, Yan
Song, Yongmao
Deng, Qun
Huang, Xiaoxu
Zhong, Jing
Hu, Wen
Zhu, Yimiao
Wang, Xiaoying
Cai, Jianting
Chen, Yan
author_sort Yu, Qiao
collection PubMed
description BACKGROUND: Currently, WeChat is widely used in disease education for patients with Crohn’s disease (CD) in China. It is beneficial for the patients to actively engage in their disease management. METHODS: In this study, we examined the source and expectations of disease information for Chinese CD patients, analysing the content of popular WeChat public accounts and their potential association with medication adherence. RESULTS: Between November 24th, 2017 and April 10th, 2018, online questionnaires were sent to CD patients from eight different large urban hospitals in China. In all, 436 patients with CD were surveyed, and 342 patients responded. Patients most frequently visited Baidu (65%), WeChat (61%) and medical websites such as Haodaifu (35%) when searching for IBD-related information. Among ten WeChat IBD public accounts, the China Crohn’s and Colitis Foundation (CCCF) (73%), “IBD Academic Officer” (21%) and “IBD in love” (21%) were the most popular. CD patients were most interested in information from the internet about diet and day-to-day health-related living with IBD (83%), an introduction to the disease (80%), and medication advances and side effects (80%). The correlation between the information provided by the top five WeChat public accounts and patients’ expectations was low. Additionally, most patients (64%) had greater confidence in overcoming the disease after learning about CD through their internet searches. Medical adherence was also related to internet access and income (p < 0.05). CONCLUSIONS: WeChat has become a major source of information for IBD education in China, but the content of WeChat didn’t fully meet patients’ expectations. Therefore, future initiatives should aim to provide high-quality information that based on patients’ demands.
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spelling pubmed-65849882019-06-27 Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey Yu, Qiao Xu, Liyi Li, Lili Zhi, Min Gu, Yubei Wang, Xinying Guo, Hong Li, Yue Fan, Yihong Yang, Bolin Xue, Meng Lv, Minfang Xu, Dingting Zhang, Hanyun Li, Yan Song, Yongmao Deng, Qun Huang, Xiaoxu Zhong, Jing Hu, Wen Zhu, Yimiao Wang, Xiaoying Cai, Jianting Chen, Yan BMC Gastroenterol Research Article BACKGROUND: Currently, WeChat is widely used in disease education for patients with Crohn’s disease (CD) in China. It is beneficial for the patients to actively engage in their disease management. METHODS: In this study, we examined the source and expectations of disease information for Chinese CD patients, analysing the content of popular WeChat public accounts and their potential association with medication adherence. RESULTS: Between November 24th, 2017 and April 10th, 2018, online questionnaires were sent to CD patients from eight different large urban hospitals in China. In all, 436 patients with CD were surveyed, and 342 patients responded. Patients most frequently visited Baidu (65%), WeChat (61%) and medical websites such as Haodaifu (35%) when searching for IBD-related information. Among ten WeChat IBD public accounts, the China Crohn’s and Colitis Foundation (CCCF) (73%), “IBD Academic Officer” (21%) and “IBD in love” (21%) were the most popular. CD patients were most interested in information from the internet about diet and day-to-day health-related living with IBD (83%), an introduction to the disease (80%), and medication advances and side effects (80%). The correlation between the information provided by the top five WeChat public accounts and patients’ expectations was low. Additionally, most patients (64%) had greater confidence in overcoming the disease after learning about CD through their internet searches. Medical adherence was also related to internet access and income (p < 0.05). CONCLUSIONS: WeChat has become a major source of information for IBD education in China, but the content of WeChat didn’t fully meet patients’ expectations. Therefore, future initiatives should aim to provide high-quality information that based on patients’ demands. BioMed Central 2019-06-20 /pmc/articles/PMC6584988/ /pubmed/31221086 http://dx.doi.org/10.1186/s12876-019-1011-3 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Yu, Qiao
Xu, Liyi
Li, Lili
Zhi, Min
Gu, Yubei
Wang, Xinying
Guo, Hong
Li, Yue
Fan, Yihong
Yang, Bolin
Xue, Meng
Lv, Minfang
Xu, Dingting
Zhang, Hanyun
Li, Yan
Song, Yongmao
Deng, Qun
Huang, Xiaoxu
Zhong, Jing
Hu, Wen
Zhu, Yimiao
Wang, Xiaoying
Cai, Jianting
Chen, Yan
Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey
title Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey
title_full Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey
title_fullStr Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey
title_full_unstemmed Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey
title_short Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey
title_sort internet and wechat used by patients with crohn’s disease in china: a multi-center questionnaire survey
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6584988/
https://www.ncbi.nlm.nih.gov/pubmed/31221086
http://dx.doi.org/10.1186/s12876-019-1011-3
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