Cargando…

Real-world utilities and health-related quality-of-life data in hemophilia patients in France and the United Kingdom

Purpose: Congenital hemophilia A and B are bleeding disorders characterized by deficiency of factors VIII and IX, respectively. This study aimed to collect health-related quality-of-life (HRQoL) and health-utility data from hemophilia patients with differing disease severity. Methods: Individuals wi...

Descripción completa

Detalles Bibliográficos
Autores principales:	Carroll, Liz, Benson, Gary, Lambert, Jérémy, Benmedjahed, Khadra, Zak, Marek, Lee, Xin Ying
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Dove 2019
Materias:	Original Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6585419/ https://www.ncbi.nlm.nih.gov/pubmed/31354248 http://dx.doi.org/10.2147/PPA.S202773

Ejemplares similares

Real-world data in the United Kingdom: opportunities and challenges
por: McDonald, Laura, et al.
Publicado: (2016)

Glucocorticoid management of adrenal insufficiency in the United Kingdom: assessment using real-world data
por: Iqbal, Kamran, et al.
Publicado: (2018)

Real‐world treatment patterns and outcomes in non‐transplant newly diagnosed multiple Myeloma in France, Germany, Italy, and the United Kingdom
por: Mohty, Mohamad, et al.
Publicado: (2020)

LIMPRINT in Specialist Lymphedema Services in United Kingdom, France, Italy, and Turkey
por: Keeley, Vaughan, et al.
Publicado: (2019)

Long-Term Outcomes of Previously Treated Adult and Adolescent Patients with Severe Hemophilia A Receiving Prophylaxis with Extended Half-Life FVIII Treatments: An Economic Analysis from a United Kingdom Perspective
por: Benson, Gary, et al.
Publicado: (2021)

Real-World Treatment Patterns in Metastatic Castration-Resistant Prostate Cancer Across Europe (France, Germany, Italy, Spain, and the United Kingdom) and Japan
por: Leith, Andrea, et al.
Publicado: (2022)

Assessing narcolepsy with cataplexy in children and adolescents: development of a cataplexy diary and the ESS-CHAD
por: Wang, Y Grace, et al.
Publicado: (2017)

Resource utilization and treatment costs of patients with severe hemophilia A: Real‐world data from the ATHNdataset
por: Recht, Michael, et al.
Publicado: (2022)

Evaluation of clinical characteristics, health care resource utilization, and cost outcomes of hemophilia A carriers and noncarriers in the United States: A real-world comparative analysis
por: Xing, Shan, et al.
Publicado: (2023)

Health-care utilization and costs in adults with systemic lupus erythematosus in the United Kingdom: a real-world observational retrospective cohort analysis
por: Samnaliev, Mihail, et al.
Publicado: (2021)

International Pharmaceutical Spending Controls: France, Germany, Sweden, and the United Kingdom
por: Gross, David J., et al.
Publicado: (1994)

Burden of vasomotor symptoms in France, Germany, Italy, Spain, and the United Kingdom
por: DiBonaventura, Marco daCosta, et al.
Publicado: (2013)

Patients’ preferences for bone metastases treatments in France, Germany and the United Kingdom
por: Hechmati, Guy, et al.
Publicado: (2014)

Physicians’ preferences for bone metastases treatments in France, Germany and the United Kingdom
por: Qian, Yi, et al.
Publicado: (2018)

Institutional environments and breakthroughs in science. Comparison of France, Germany, the United Kingdom, and the United States
por: Heinze, Thomas, et al.
Publicado: (2020)

Patient selection for hemophilia gene therapy: Real‐life data from a single center
por: Krumb, Evelien, et al.
Publicado: (2021)

Quality of Life with Late-Onset Pompe Disease: Qualitative Interviews and General Public Utility Estimation in the United Kingdom
por: Hubig, Lena, et al.
Publicado: (2023)

Cochlear implants in the United Kingdom: Awareness and utilization
por: Raine, Chris
Publicado: (2013)

Comparison of Real-World Dose and Consumption for Two Extended Half-Life Recombinant Factor VIII Products for the Treatment of Hemophilia A in the United States
por: Wu, Yanyu, et al.
Publicado: (2022)

Real-World Data on Bleeding Patterns of Hemophilia A Patients Treated with Emicizumab
por: Levy-Mendelovich, Sarina, et al.
Publicado: (2021)

Literature review of the burden of prostate cancer in Germany, France, the United Kingdom and Canada
por: Smith-Palmer, J., et al.
Publicado: (2019)

Real-World Early Treatment with Room Temperature–Stable Recombinant Factor VIIa in Hemophilia A/B and Inhibitors: SMART-7™ Post Hoc Analyses
por: Demartis, Francesco, et al.
Publicado: (2017)

Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients’ and parents’ quality of life: the phenylketonuria – quality of life (PKU-QOL) questionnaires
por: Regnault, Antoine, et al.
Publicado: (2015)

Real-World Long-Term Ivacaftor for Cystic Fibrosis in France: Clinical Effectiveness and Healthcare Resource Utilization
por: Hubert, Dominique, et al.
Publicado: (2021)

Real-world outcomes in hereditary angioedema: first experience from the Icatibant Outcome Survey in the United Kingdom
por: Longhurst, Hilary J., et al.
Publicado: (2018)

Real-world persistence with antiretroviral therapy for HIV in the United Kingdom: A multicentre retrospective cohort study
por: Lewis, Joseph M., et al.
Publicado: (2017)

Prevalence and Mortality of Individuals With X-Linked Hypophosphatemia: A United Kingdom Real-World Data Analysis
por: Hawley, Samuel, et al.
Publicado: (2019)

POSC402 Impact of COVID-19 on Influenza Vaccine Sales in France, United Kingdom and United States
por: Ngami, A, et al.
Publicado: (2022)

Age Differences in Online News Consumption and Online Political Expression in the United States, United Kingdom, and France
por: Boulianne, Shelley, et al.
Publicado: (2021)

COVID-19 Hampered Diagnosis of TB Infection in France, Italy, Spain and the United Kingdom
por: García-García, José-María, et al.
Publicado: (2022)

The cost of Mycobacterium avium complex lung disease in Canada, France, Germany, and the United Kingdom: a nationally representative observational study
por: Goring, S. M., et al.
Publicado: (2018)

Hemophilia Burden of Disease: A Systematic Review of the Cost-Utility Literature for Hemophilia
por: Thorat, Teja, et al.
Publicado: (2018)

Correction to: Real-World Long-Term Ivacaftor for Cystic Fibrosis in France: Clinical Effectiveness and Healthcare Resource Utilization
por: Hubert, Dominique, et al.
Publicado: (2021)

Costs and utilization of treatment in patients with hemophilia
por: Rocha, Patrícia, et al.
Publicado: (2015)

Results of a United Kingdom real-world study of polatuzumab vedotin, bendamustine, and rituximab for relapsed/refractory DLBCL
por: Northend, Michael, et al.
Publicado: (2022)

A retrospective real-world study of the current treatment pathways for myelofibrosis in the United Kingdom: the REALISM UK study
por: Mead, Adam J., et al.
Publicado: (2022)

The kingdom of this world /
por: Carpentier, Alejo, 1904-1980
Publicado: (2006)

Principles of care for acquired hemophilia
por: Dolan, Gerry, et al.
Publicado: (2021)

Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries
por: Bosch, Annet M, et al.
Publicado: (2015)

Desmopressin for bleeding in non‐severe hemophilia A: Suboptimal use in a real‐world setting
por: Zwagemaker, Anne‐Fleur, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_65140d3ik4d7h62iiuaoesc8ef