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De-duplicating patient records from three independent data sources reveals the incidence of rare neuromuscular disorders in Germany
BACKGROUND: Estimation of incidence in rare diseases is often challenging due to unspecific and incomplete coding and recording systems. Patient- and health care provider-driven data collections are held with different organizations behind firewalls to protect the privacy of patients. They tend to b...
| Autores principales: | , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6591958/ https://www.ncbi.nlm.nih.gov/pubmed/31234869 http://dx.doi.org/10.1186/s13023-019-1125-2 |