Cargando…
Health related quality of life of infants and children with avoidant restrictive food intake disorder
OBJECTIVE: The aim of this study was to compare health related quality of life (HRQOL) in infants and children with avoidant restrictive food intake disorder (ARFID) to healthy and chronically ill controls. METHOD: A cross‐sectional study was conducted in children who meet ARFID criteria at our tert...
Autores principales: | , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley & Sons, Inc.
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6594067/ https://www.ncbi.nlm.nih.gov/pubmed/30734346 http://dx.doi.org/10.1002/eat.23037 |
_version_ | 1783430181665374208 |
---|---|
author | Krom, Hilde van der Sluijs Veer, Liesbeth van Zundert, Suzanne Otten, Marie‐Anne Benninga, Marc Haverman, Lotte Kindermann, Angelika |
author_facet | Krom, Hilde van der Sluijs Veer, Liesbeth van Zundert, Suzanne Otten, Marie‐Anne Benninga, Marc Haverman, Lotte Kindermann, Angelika |
author_sort | Krom, Hilde |
collection | PubMed |
description | OBJECTIVE: The aim of this study was to compare health related quality of life (HRQOL) in infants and children with avoidant restrictive food intake disorder (ARFID) to healthy and chronically ill controls. METHOD: A cross‐sectional study was conducted in children who meet ARFID criteria at our tertiary care pediatric feeding clinic (September 2014 to July 2016). Before consultation, parents of patients (n = 100) were asked to complete questionnaires to determine HRQOL: the TNO‐AZL Preschool Children Quality of Life (0–5 years), and “Pediatric Quality of Life Inventory” (6–7 and 8–10 years). HRQOL of ARFID patients was compared to both healthy (0–5 years n = 241; 6–7 years n = 61; 8–10 years n = 192) and chronically ill (0–5 years n = 79; 6–7 years n = 11; 8–10 years n = 26) controls. RESULTS: The prevalence of ARFID was 64%. HRQOL of ARFID patients aged 0–5 years (n = 37) was significantly lower on 6/12 scales (appetite, lungs, stomach, motor functioning, positive mood and liveliness) compared to healthy controls (P < .01), and on 4/12 scales (appetite, stomach, motor functioning, and liveliness) compared to chronically ill controls (P < .01). The ARFID patients scored significantly better on the problem behavior scale compared to healthy and chronically ill controls (P < .01). ARFID patients aged 6–7 (n = 9) had significantly lower scores in 3/6 scales (total score, psychosocial health, and school functioning) (P < .01), and aged 8–10 (n = 2) had a significantly lower school functioning scale (P < .01) compared to healthy controls. CONCLUSION: HRQOL of children with ARFID is decreased on multiple scales. The effect on HRQOL should be incorporated in clinical practice, and clinical studies should add HRQOL as an outcome measure. |
format | Online Article Text |
id | pubmed-6594067 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | John Wiley & Sons, Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-65940672019-07-10 Health related quality of life of infants and children with avoidant restrictive food intake disorder Krom, Hilde van der Sluijs Veer, Liesbeth van Zundert, Suzanne Otten, Marie‐Anne Benninga, Marc Haverman, Lotte Kindermann, Angelika Int J Eat Disord Original Articles OBJECTIVE: The aim of this study was to compare health related quality of life (HRQOL) in infants and children with avoidant restrictive food intake disorder (ARFID) to healthy and chronically ill controls. METHOD: A cross‐sectional study was conducted in children who meet ARFID criteria at our tertiary care pediatric feeding clinic (September 2014 to July 2016). Before consultation, parents of patients (n = 100) were asked to complete questionnaires to determine HRQOL: the TNO‐AZL Preschool Children Quality of Life (0–5 years), and “Pediatric Quality of Life Inventory” (6–7 and 8–10 years). HRQOL of ARFID patients was compared to both healthy (0–5 years n = 241; 6–7 years n = 61; 8–10 years n = 192) and chronically ill (0–5 years n = 79; 6–7 years n = 11; 8–10 years n = 26) controls. RESULTS: The prevalence of ARFID was 64%. HRQOL of ARFID patients aged 0–5 years (n = 37) was significantly lower on 6/12 scales (appetite, lungs, stomach, motor functioning, positive mood and liveliness) compared to healthy controls (P < .01), and on 4/12 scales (appetite, stomach, motor functioning, and liveliness) compared to chronically ill controls (P < .01). The ARFID patients scored significantly better on the problem behavior scale compared to healthy and chronically ill controls (P < .01). ARFID patients aged 6–7 (n = 9) had significantly lower scores in 3/6 scales (total score, psychosocial health, and school functioning) (P < .01), and aged 8–10 (n = 2) had a significantly lower school functioning scale (P < .01) compared to healthy controls. CONCLUSION: HRQOL of children with ARFID is decreased on multiple scales. The effect on HRQOL should be incorporated in clinical practice, and clinical studies should add HRQOL as an outcome measure. John Wiley & Sons, Inc. 2019-02-07 2019-04 /pmc/articles/PMC6594067/ /pubmed/30734346 http://dx.doi.org/10.1002/eat.23037 Text en © 2019 The Authors. International Journal of Eating Disorders published by Wiley Periodicals, Inc. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Original Articles Krom, Hilde van der Sluijs Veer, Liesbeth van Zundert, Suzanne Otten, Marie‐Anne Benninga, Marc Haverman, Lotte Kindermann, Angelika Health related quality of life of infants and children with avoidant restrictive food intake disorder |
title | Health related quality of life of infants and children with avoidant restrictive food intake disorder |
title_full | Health related quality of life of infants and children with avoidant restrictive food intake disorder |
title_fullStr | Health related quality of life of infants and children with avoidant restrictive food intake disorder |
title_full_unstemmed | Health related quality of life of infants and children with avoidant restrictive food intake disorder |
title_short | Health related quality of life of infants and children with avoidant restrictive food intake disorder |
title_sort | health related quality of life of infants and children with avoidant restrictive food intake disorder |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6594067/ https://www.ncbi.nlm.nih.gov/pubmed/30734346 http://dx.doi.org/10.1002/eat.23037 |
work_keys_str_mv | AT kromhilde healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder AT vandersluijsveerliesbeth healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder AT vanzundertsuzanne healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder AT ottenmarieanne healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder AT benningamarc healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder AT havermanlotte healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder AT kindermannangelika healthrelatedqualityoflifeofinfantsandchildrenwithavoidantrestrictivefoodintakedisorder |