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Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study

OBJECTIVES: The aim of this study was to explore the barriers to accessing cancer services faced by adults with pre-existing physical disabilities. DESIGN: Cross-sectional, exploratory qualitative study. Data were collected by semistructured interviews and analysed thematically. SETTING: Participant...

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Autores principales: Sakellariou, Dikaios, Anstey, Sally, Gaze, Sarah, Girt, Eleri, Kelly, Daniel, Moore, Barbara, Polack, Sarah, Pratt, Roger, Tyrer, Gill, Warren, Narelle, Wilkinson, Wendy, Courtenay, Molly
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6597631/
https://www.ncbi.nlm.nih.gov/pubmed/31248925
http://dx.doi.org/10.1136/bmjopen-2018-027555
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author Sakellariou, Dikaios
Anstey, Sally
Gaze, Sarah
Girt, Eleri
Kelly, Daniel
Moore, Barbara
Polack, Sarah
Pratt, Roger
Tyrer, Gill
Warren, Narelle
Wilkinson, Wendy
Courtenay, Molly
author_facet Sakellariou, Dikaios
Anstey, Sally
Gaze, Sarah
Girt, Eleri
Kelly, Daniel
Moore, Barbara
Polack, Sarah
Pratt, Roger
Tyrer, Gill
Warren, Narelle
Wilkinson, Wendy
Courtenay, Molly
author_sort Sakellariou, Dikaios
collection PubMed
description OBJECTIVES: The aim of this study was to explore the barriers to accessing cancer services faced by adults with pre-existing physical disabilities. DESIGN: Cross-sectional, exploratory qualitative study. Data were collected by semistructured interviews and analysed thematically. SETTING: Participants were recruited through statutory and third sector organisations in England and Wales between October 2017 and October 2018. PARTICIPANTS: 18 people with a diagnosis of cancer and a pre-existing physical disability. RESULTS: The findings illustrate that people with physical disabilities in England and Wales face a variety of barriers to accessing cancer services. The overall theme that emerged was that participants experienced a lack of attitudinal and institutional preparation both from healthcare professionals and healthcare facilities. This overall theme is illustrated through three subthemes: lack of acknowledgment of disability, unseeing disability and physical inaccessibility. CONCLUSIONS: As the population ages and increasing numbers of people live with cancer and disability, it is important to develop knowledge to respond to the needs of this population. The mere existence of services does not guarantee their usability. Services need to be relevant, flexible, and accessible and offered in a respectful manner. It is important that healthcare professionals work towards inclusive healthcare provision, enabling the utilisation of services by all. Necessary steps to be taken include better communication between the various professionals and across the different teams involved in patients’ care, raising awareness of how physical disability can affect or interact with cancer-related treatment and creating more accessible physical environments.
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spelling pubmed-65976312019-07-18 Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study Sakellariou, Dikaios Anstey, Sally Gaze, Sarah Girt, Eleri Kelly, Daniel Moore, Barbara Polack, Sarah Pratt, Roger Tyrer, Gill Warren, Narelle Wilkinson, Wendy Courtenay, Molly BMJ Open Patient-Centred Medicine OBJECTIVES: The aim of this study was to explore the barriers to accessing cancer services faced by adults with pre-existing physical disabilities. DESIGN: Cross-sectional, exploratory qualitative study. Data were collected by semistructured interviews and analysed thematically. SETTING: Participants were recruited through statutory and third sector organisations in England and Wales between October 2017 and October 2018. PARTICIPANTS: 18 people with a diagnosis of cancer and a pre-existing physical disability. RESULTS: The findings illustrate that people with physical disabilities in England and Wales face a variety of barriers to accessing cancer services. The overall theme that emerged was that participants experienced a lack of attitudinal and institutional preparation both from healthcare professionals and healthcare facilities. This overall theme is illustrated through three subthemes: lack of acknowledgment of disability, unseeing disability and physical inaccessibility. CONCLUSIONS: As the population ages and increasing numbers of people live with cancer and disability, it is important to develop knowledge to respond to the needs of this population. The mere existence of services does not guarantee their usability. Services need to be relevant, flexible, and accessible and offered in a respectful manner. It is important that healthcare professionals work towards inclusive healthcare provision, enabling the utilisation of services by all. Necessary steps to be taken include better communication between the various professionals and across the different teams involved in patients’ care, raising awareness of how physical disability can affect or interact with cancer-related treatment and creating more accessible physical environments. BMJ Publishing Group 2019-06-27 /pmc/articles/PMC6597631/ /pubmed/31248925 http://dx.doi.org/10.1136/bmjopen-2018-027555 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Patient-Centred Medicine
Sakellariou, Dikaios
Anstey, Sally
Gaze, Sarah
Girt, Eleri
Kelly, Daniel
Moore, Barbara
Polack, Sarah
Pratt, Roger
Tyrer, Gill
Warren, Narelle
Wilkinson, Wendy
Courtenay, Molly
Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
title Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
title_full Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
title_fullStr Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
title_full_unstemmed Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
title_short Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
title_sort barriers to accessing cancer services for adults with physical disabilities in england and wales: an interview-based study
topic Patient-Centred Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6597631/
https://www.ncbi.nlm.nih.gov/pubmed/31248925
http://dx.doi.org/10.1136/bmjopen-2018-027555
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