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Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study
OBJECTIVES: The aim of this study was to explore the barriers to accessing cancer services faced by adults with pre-existing physical disabilities. DESIGN: Cross-sectional, exploratory qualitative study. Data were collected by semistructured interviews and analysed thematically. SETTING: Participant...
Autores principales: | , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6597631/ https://www.ncbi.nlm.nih.gov/pubmed/31248925 http://dx.doi.org/10.1136/bmjopen-2018-027555 |
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author | Sakellariou, Dikaios Anstey, Sally Gaze, Sarah Girt, Eleri Kelly, Daniel Moore, Barbara Polack, Sarah Pratt, Roger Tyrer, Gill Warren, Narelle Wilkinson, Wendy Courtenay, Molly |
author_facet | Sakellariou, Dikaios Anstey, Sally Gaze, Sarah Girt, Eleri Kelly, Daniel Moore, Barbara Polack, Sarah Pratt, Roger Tyrer, Gill Warren, Narelle Wilkinson, Wendy Courtenay, Molly |
author_sort | Sakellariou, Dikaios |
collection | PubMed |
description | OBJECTIVES: The aim of this study was to explore the barriers to accessing cancer services faced by adults with pre-existing physical disabilities. DESIGN: Cross-sectional, exploratory qualitative study. Data were collected by semistructured interviews and analysed thematically. SETTING: Participants were recruited through statutory and third sector organisations in England and Wales between October 2017 and October 2018. PARTICIPANTS: 18 people with a diagnosis of cancer and a pre-existing physical disability. RESULTS: The findings illustrate that people with physical disabilities in England and Wales face a variety of barriers to accessing cancer services. The overall theme that emerged was that participants experienced a lack of attitudinal and institutional preparation both from healthcare professionals and healthcare facilities. This overall theme is illustrated through three subthemes: lack of acknowledgment of disability, unseeing disability and physical inaccessibility. CONCLUSIONS: As the population ages and increasing numbers of people live with cancer and disability, it is important to develop knowledge to respond to the needs of this population. The mere existence of services does not guarantee their usability. Services need to be relevant, flexible, and accessible and offered in a respectful manner. It is important that healthcare professionals work towards inclusive healthcare provision, enabling the utilisation of services by all. Necessary steps to be taken include better communication between the various professionals and across the different teams involved in patients’ care, raising awareness of how physical disability can affect or interact with cancer-related treatment and creating more accessible physical environments. |
format | Online Article Text |
id | pubmed-6597631 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-65976312019-07-18 Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study Sakellariou, Dikaios Anstey, Sally Gaze, Sarah Girt, Eleri Kelly, Daniel Moore, Barbara Polack, Sarah Pratt, Roger Tyrer, Gill Warren, Narelle Wilkinson, Wendy Courtenay, Molly BMJ Open Patient-Centred Medicine OBJECTIVES: The aim of this study was to explore the barriers to accessing cancer services faced by adults with pre-existing physical disabilities. DESIGN: Cross-sectional, exploratory qualitative study. Data were collected by semistructured interviews and analysed thematically. SETTING: Participants were recruited through statutory and third sector organisations in England and Wales between October 2017 and October 2018. PARTICIPANTS: 18 people with a diagnosis of cancer and a pre-existing physical disability. RESULTS: The findings illustrate that people with physical disabilities in England and Wales face a variety of barriers to accessing cancer services. The overall theme that emerged was that participants experienced a lack of attitudinal and institutional preparation both from healthcare professionals and healthcare facilities. This overall theme is illustrated through three subthemes: lack of acknowledgment of disability, unseeing disability and physical inaccessibility. CONCLUSIONS: As the population ages and increasing numbers of people live with cancer and disability, it is important to develop knowledge to respond to the needs of this population. The mere existence of services does not guarantee their usability. Services need to be relevant, flexible, and accessible and offered in a respectful manner. It is important that healthcare professionals work towards inclusive healthcare provision, enabling the utilisation of services by all. Necessary steps to be taken include better communication between the various professionals and across the different teams involved in patients’ care, raising awareness of how physical disability can affect or interact with cancer-related treatment and creating more accessible physical environments. BMJ Publishing Group 2019-06-27 /pmc/articles/PMC6597631/ /pubmed/31248925 http://dx.doi.org/10.1136/bmjopen-2018-027555 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/. |
spellingShingle | Patient-Centred Medicine Sakellariou, Dikaios Anstey, Sally Gaze, Sarah Girt, Eleri Kelly, Daniel Moore, Barbara Polack, Sarah Pratt, Roger Tyrer, Gill Warren, Narelle Wilkinson, Wendy Courtenay, Molly Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study |
title | Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study |
title_full | Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study |
title_fullStr | Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study |
title_full_unstemmed | Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study |
title_short | Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study |
title_sort | barriers to accessing cancer services for adults with physical disabilities in england and wales: an interview-based study |
topic | Patient-Centred Medicine |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6597631/ https://www.ncbi.nlm.nih.gov/pubmed/31248925 http://dx.doi.org/10.1136/bmjopen-2018-027555 |
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