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Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease

BACKGROUND AND AIMS: To date, there are no validated measures in IBD to assess the level of preparedness for transition into adult health care. The purpose of this study was to develop and assess the reliability and validity of a “Transition Readiness” (TR) measure for adolescents with IBD, as well...

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Autores principales: Hammerman, Oded, Bayatra, Areej, Turner, Dan, Levine, Arie, Shamir, Raanan, Assa, Amit, Wilschanski, Michael, Bachner, Yaacov G., Israeli, Eran
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6604282/
https://www.ncbi.nlm.nih.gov/pubmed/31316560
http://dx.doi.org/10.1155/2019/5062105
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author Hammerman, Oded
Bayatra, Areej
Turner, Dan
Levine, Arie
Shamir, Raanan
Assa, Amit
Wilschanski, Michael
Bachner, Yaacov G.
Israeli, Eran
author_facet Hammerman, Oded
Bayatra, Areej
Turner, Dan
Levine, Arie
Shamir, Raanan
Assa, Amit
Wilschanski, Michael
Bachner, Yaacov G.
Israeli, Eran
author_sort Hammerman, Oded
collection PubMed
description BACKGROUND AND AIMS: To date, there are no validated measures in IBD to assess the level of preparedness for transition into adult health care. The purpose of this study was to develop and assess the reliability and validity of a “Transition Readiness” (TR) measure for adolescents with IBD, as well as to evaluate the level of TR synchronicity between adolescents themselves, their parents, and their pediatric gastroenterologists. METHODS: A self-assessment tool was created to evaluate TR. Items were reviewed for face validation by IBD experts, and an exploratory factor analysis was performed which yielded 3 distinct domains. The study cohort included adolescents aged 12-21 yrs, their parents, and their physicians in pediatric IBD centers. Correlations between patient/parent/physician TR between each of the domains and the overall TR score to age were assessed. RESULTS: 63 subjects (average age 16.6 yrs/79% Crohn's disease/44% male) participated in this study. There was a significant correlation between the scoring of adolescents and parents on all three domains. The correlation between adolescents and physicians, as well as between parents and physicians, was only consistent for self-efficacy. Self-efficacy significantly correlated with age, while the correlations between perceived knowledge and perception of medical care with age were not significant. CONCLUSION: Validation of a novel TR measurement for adolescents with IBD demonstrated a good correlation between patients and parents. Out of the three proposed constructs, perceived self-efficacy is the most salient measure.
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spelling pubmed-66042822019-07-17 Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease Hammerman, Oded Bayatra, Areej Turner, Dan Levine, Arie Shamir, Raanan Assa, Amit Wilschanski, Michael Bachner, Yaacov G. Israeli, Eran Gastroenterol Res Pract Research Article BACKGROUND AND AIMS: To date, there are no validated measures in IBD to assess the level of preparedness for transition into adult health care. The purpose of this study was to develop and assess the reliability and validity of a “Transition Readiness” (TR) measure for adolescents with IBD, as well as to evaluate the level of TR synchronicity between adolescents themselves, their parents, and their pediatric gastroenterologists. METHODS: A self-assessment tool was created to evaluate TR. Items were reviewed for face validation by IBD experts, and an exploratory factor analysis was performed which yielded 3 distinct domains. The study cohort included adolescents aged 12-21 yrs, their parents, and their physicians in pediatric IBD centers. Correlations between patient/parent/physician TR between each of the domains and the overall TR score to age were assessed. RESULTS: 63 subjects (average age 16.6 yrs/79% Crohn's disease/44% male) participated in this study. There was a significant correlation between the scoring of adolescents and parents on all three domains. The correlation between adolescents and physicians, as well as between parents and physicians, was only consistent for self-efficacy. Self-efficacy significantly correlated with age, while the correlations between perceived knowledge and perception of medical care with age were not significant. CONCLUSION: Validation of a novel TR measurement for adolescents with IBD demonstrated a good correlation between patients and parents. Out of the three proposed constructs, perceived self-efficacy is the most salient measure. Hindawi 2019-06-18 /pmc/articles/PMC6604282/ /pubmed/31316560 http://dx.doi.org/10.1155/2019/5062105 Text en Copyright © 2019 Oded Hammerman et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Hammerman, Oded
Bayatra, Areej
Turner, Dan
Levine, Arie
Shamir, Raanan
Assa, Amit
Wilschanski, Michael
Bachner, Yaacov G.
Israeli, Eran
Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease
title Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease
title_full Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease
title_fullStr Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease
title_full_unstemmed Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease
title_short Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease
title_sort initial development and validation of a transition readiness scale for adolescents with inflammatory bowel disease
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6604282/
https://www.ncbi.nlm.nih.gov/pubmed/31316560
http://dx.doi.org/10.1155/2019/5062105
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