Self-efficacy and self-management strategies in acute intermittent porphyria

BACKGROUND: Acute intermittent porphyria (AIP) is an inherited metabolic disease with low clinical penetrance caused by mutations in the hydroxymethylbilane (HMBS) gene. Although most patients experience little or no symptoms, serious attacks may include excruciating pain, severe electrolyte disturb...

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Detalles Bibliográficos
Autores principales: Hammersland, Marte H., Aarsand, Aasne K., Sandberg, Sverre, Andersen, Janice
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6607542/
https://www.ncbi.nlm.nih.gov/pubmed/31269991
http://dx.doi.org/10.1186/s12913-019-4285-9

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